(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

To auntnanny. Yes I did sputum testing 3 years ago and was positive for Mac. I have not had any recent testing but am due for a cat scan in June. My last scan showed that the Mac was progressing. At first my cough was very non productive, but after this last bout of bronchitis in November it became more severe and I do cough up mucus. It is difficult at work. I have to tell all my customers that I’m not contagious. I design kitchens and usually sit with them for a couple of hours at a time. I have recently gone to part time hours due to how tired I am and how much I cough. I do have to work though, even at my age of 71. I will check with your doc’s office tomorrow to see if I can get an appointment.

@sounder27. 72 and still an active realtor, albeit MAC slowing me down. Before meeting with clients, I take the Broncolin cough syrup recommended here. And have their cough drops on hand. Work splendidly!
Pulmonologist ordered tiny little perles of Tessalon which are helpful too.
Where do you live? I’m in Longwood just no of Orlando.

sounder27 …… I understand. I'm 78 and have an in-home office. There are times I just hate to go to town because of the coughing. Then..... it may get better for a while. But I think it's important you see a Mayo doctor. They kind of work in small groups and confer about all of us. So we really have a consensus of opinion versus just one person. I just think you will be happy you went.

sounder27 …… I understand. I'm 78 and have an in-home office. There are times I just hate to go to town because of the coughing. Then..... it may get better for a while. But I think it's important you see a Mayo doctor. They kind of work in small groups and confer about all of us. So we really have a consensus of opinion versus just one person. I just think you will be happy you went.

To auntnanny. Yes I did sputum testing 3 years ago and was positive for Mac. I have not had any recent testing but am due for a cat scan in June. My last scan showed that the Mac was progressing. At first my cough was very non productive, but after this last bout of bronchitis in November it became more severe and I do cough up mucus. It is difficult at work. I have to tell all my customers that I’m not contagious. I design kitchens and usually sit with them for a couple of hours at a time. I have recently gone to part time hours due to how tired I am and how much I cough. I do have to work though, even at my age of 71. I will check with your doc’s office tomorrow to see if I can get an appointment.

For some of you who has no result in stopping their cough with traditional medicine may want to try herbal medicine like clear lungs. One effective therapy is CHINESE ACUPUNCTURE is very effective to help many lung problem. I found this effective CHINESE ACUPUNCTURIST in St Petersburgh Florida. Dr Su Liang Ku on the 2798 66th St. N. 727-541-2666 . This 77 years old man has 50 years in General/Family Practice Acupuncture, Tuina, Herbal Medicine etc. For those of you interested I guarantee you won’t regret it. He really knows what he is doing. His session cost 70$. Just wanted to share this possibility with you. Have a great week! We are going back to Canada Tuesday morning! Nic

@sounder27 That must be tough to still try to confer with clients while coughing and losing energy. You have my dream job by the way. I am a degreed interior designer but got too ill to keep working. I am doing much better now and consider going back into it part time. My brother has a remodel business and just did a spectacular kitchen in an old 1875 home in Richmond, Va. I hope you can get a grip on yoir cough and resume your work with more ease. If you lived near me, I'd help you with your business!

windwalker -- thank you for asking. I a, trying to do 30 days of toby right now. Just finished my second week. First attempt was not great -- I had trouble breathing and came off in 3 weeks. Waited about a month and want desperately to make it work. So, I'm trying again. There is some MAC in my sputum testing and Mayo doctor says if we can't stop some of the cough and phlegm with toby I may need to do the dreaded course of 3 antibiotics. I'm trying...…. I've lost a little weight and feel weak but at 78 years I assume I won't feel like a teenager. Incidentally, for other's info also, I got my first month's supply of toby at the Mayo pharmacy and they told me they were able to put it through on my Medicare B. It was cost-free to me. This time, I asked doctor to send script to my closer pharmacy -- Walgreens -- and they said they could not get it on Medicare B and they wanted 1100 dollars for a month's supply. I went back to Mayo Pharmacy and they sent it in cost free again. Don't know I this might help anyone but thought I would share the story. I'm happy to answer any questions I can if I can be of help to anyone. I'll be interested in whether your friend is still doing the bronchoscopies (sp).