Help! Debilitating Fatigue

Posted by plshelpmyfatigue @plshelpmyfatigue, Aug 8, 2018

Hi all-- I have had debilitating fatigue for over a year now. We discovered I have a thyroid disease; however, even after months of having normal numbers, the fatigue has persisted. About four weeks ago hard, painless lymph nodes popped up in my groin and my neck and are continuing to grow. Furthermore, I have had a fever of 100 degrees for 3 weeks. My blood results showed a 13.2 mg/l for C reactive protein, low MCV, high neutrophils, and relatively low lymphocytes. I have lost 9 pounds in two weeks. I am studying abroad in Spain, and the doctor I met with said it is probably just a throat infection and to take antibiotics, but my throat doesn't hurt and neither do my lymph nodes. I was wondering if anyone had any insight or comments, because I know these are all the symptoms of lymphoma... I am meeting with an American doctor next week, but thought I would post here to see if I could receive insight before then.Thank you!

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@kanaazpereira

Hello @aubree6284,

I can only imagine your anxiety and worry! Angioimmunoblastic T-cell lymphoma (AITL) is a rare form of non-Hodgkin lymphoma, which is a group of related cancers that affect the lymphatic system (lymphomas). https://rarediseases.org/rare-diseases/angioimmunoblastic-t-cell-lymphoma/
I’m tagging @thorsmom1959 who mentioned being diagnosed with AITL in this discussion:
https://connect.mayoclinic.org/discussion/angioimmuneoblastic-t-cell-lymphoma/
@aubree6284, may I ask if you would share a bit more, perhaps about symptoms that led your husband to get a diagnosis? What tests has your husband undergone?

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My husband has been diagnosed with AITL and is presently undergoing a clinical trial at Memorial Sloan-Kettering in NY. What is your form of treatment?

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@hrc7

My husband has been diagnosed with AITL and is presently undergoing a clinical trial at Memorial Sloan-Kettering in NY. What is your form of treatment?

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Welcome, hrc7. Can you tell me more about the clinical trial that your husband is taking part in for angioimmunoblastic T-cell lymphoma (AITL)? What treatment are they investigating?

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