Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

Helen, Volunteer Mentor | @naturegirl5 | Dec 7, 2021

I'm thinking of you too @beckylynne1960. I'm hoping you got your questions answered today and you have your plan of what's next. When you're ready, will you come back and let me know?

Blessing to you, BeckyLynne.

artgirl2 | @artgirl2 | Dec 8, 2021

Hello: I am a pancreatic cancer survivor. The adenocarcinoma of the pancreas was found by accident. (A very long story.) Mayo Clinic truly saved my life. Dr. Chari was my pancreatic specialist. Dr. Farnell was my surgeon. It was a very long recovery. I was given a 6 month prognosis. It will be fifteen years since the cancer was found this coming January. Yes, I am a pancreatic AND breast cancer (two types) survivor. I have finally decided it might be time to talk about it. Thank you for listening. I wish everyone the best.

ted001 | @ted001 | Dec 8, 2021

In reply to @artgirl2 "Hello: I am a pancreatic cancer survivor. The adenocarcinoma of the pancreas was found by accident...." + (show)

Wow sounds so great and happy reading all this from you.

susanpmadigan | @susanpmadigan | Dec 8, 2021

God bless !!! How wonderful 15 years. You truly were given a second chance at life.

fogel1960 | @fogel1960 | Dec 11, 2021

Hi, I have been in & out of the hospital the entire year for weeks with acute Pancreatitis. As of now, zero appetite, list 30 lbs in 7 weeks, sever upper abdomen pain that radiates to back, diarrhea every day.
My recent catscan shows abnormal lymp nodes, bilirubin in urine, endopathy. But no jaundice. Im afraid it’s Pancreatic cancer. I have an appointment on Dec 13. What does anyone think I am dealing with. I had my gallbladder out yrs ago & never smoked or drank

Colleen Young, Connect Director | @colleenyoung | Dec 11, 2021

In reply to @artgirl2 "Hello: I am a pancreatic cancer survivor. The adenocarcinoma of the pancreas was found by accident...." + (show)

Artgirl, it is so important to hear stories like yours. Fifteen year survivor of pancreatic cancer is amazing in itself. But did I understand correctly that you’ve also had 2 types of breast cancer? Did you have breast cancer after your pancreatic cancer diagnosis?

Colleen Young, Connect Director | @colleenyoung | Dec 11, 2021

In reply to @fogel1960 "Hi, I have been in & out of the hospital the entire year for weeks with..." + (show)

I can imagine how concerned you are Fogel. The symptoms of pancreatitis are similar to pancreatic cancer. I will be thinking of you on Monday. Will you return to let us know what you learn?

artgirl2 | @artgirl2 | Dec 11, 2021

In reply to @colleenyoung "Artgirl, it is so important to hear stories like yours. Fifteen year survivor of pancreatic cancer..." + (show)

Yes, that is correct.

CarynS | @caryns | Dec 12, 2021

In reply to @artgirl2 "Hello: I am a pancreatic cancer survivor. The adenocarcinoma of the pancreas was found by accident...." + (show)

Hi @artgirl2
It would be a blessing for me to hear your story. I have been slowly struggling through recovery from the Whipple the past month, which had me in hospital for 21 days due to unexpected complications. It helps to know others have survived and even thrived after this when it seems so difficult at the moment.

fogel1960 | @fogel1960 | Dec 12, 2021

In reply to @colleenyoung "I can imagine how concerned you are Fogel. The symptoms of pancreatitis are similar to pancreatic..." + (show)

Thank you!
If anyone else can give insight, J would appreciate it!

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