Living with Neuropathy - Welcome to the group

I was first diagnosed with diabetic neuropathy in 1992. I am having quite a bit of trouble with losing my balance recently. I use a cane and am wondering if I maybe should change to a walker.

Hi @sandik74, Welcome to Connect. I use a walker at night when I have to get up to use the bathroom. I use because it gives me a little more confidence when I'm not quite awake. If you don't have the confidence in using the cane it might be something to think about. You might also be interested in the following discussion:

-- Diabetic Neuropathy progressing?: https://connect.mayoclinic.org/discussion/diabetic-neuropathy-progressing/

A few years ago at a Minnesota Neuropathy Association meeting we had a presentation of a new product called Walkasins being developed for people with diabetic neuropathy. One of the research scientists that was involved was from John Hopkins. The product is now available and looks like it could be useful for some people with balance issues that are unable to walk. More info here - https://rxfunction.com/our-product/

Have you discussed using a walker with your doctor or tried any physical therapy or exercises to help improve your balance?

Hello ~ Has anyone tried the Walkasins device? Has it helped you and how? Thank you.

@retired123, Correction to my post above - the research scientist that gave us a presentation on the new product at the time was Lars Oddsson, PhD associated with Boston University (https://cse.umn.edu/tli/lars-oddsson-phd). Here's a really good review and patient's perspective. Hopefully any members that may be using it will respond also.

Thank you for allowing me to join

I recently got diagnosed with neuropathy and put on Lyrica

Welcome to Connect @clou4516, I'm glad you found us. Connect is a great place to ask questions and share your experience and what helps you. You might also be interested in the follwing discussion to learn what other members have shared:

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Do you mind sharing a little more about your neuropathy diagnosis and your symptoms?

I have PN due to spinal issues, numbness, tigling, weakness right lower leg, impaired balance, some difficulty walking.I read about the Walkasins on the PNF website, called the company, found out the closest practice I could be evaluated at (2 hrs away), made the appointment and went to be evaluated. The evaluation went well, the PT attached the Walkasins and off I went. There is a small zap as you walk along, but I couldn’t determine any improvement. The PT said outright- “You need a gait analysis”. I was scheduled at a different clinic. The gait analysis is done with special shoe inserts that send info to a computer the PT manages. There were all sorts of graphs- very interesting. That PT said I needed adaptive shoes. I googled “Dick’s Sporting Goods” near me, went and bought a pair of Brooks, brought them back to the practice, and came back when they were done. It was like a miracle! I was landing flat without any push-off on that foot, he embedded a metal rocker which gives me a mechanical push-off. It’s like night and day walking now- much more stable, much less effort.

Thank you for the info. Was any of this covered by insurance? Was the PT specialized in neuropathy? Was this a specialized clinic? I need to give this a look see!

That's really good news @centre! Thank you for sharing your experience with Walkasins.