← Return to AFIB meds (anticoagulants) + wet macular degeneration

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@downeaster

I have dry AMD in my left eye and wet AMD in my right eye, diagnosed 6 years ago. My AFib diagnosis ca. 10 years ago. I have a injections in my right eye every 3 months, have had them for 6 years and my AMD is stable – I do not have the meds name handy, but expect it is what you are receiving. I have taken Coumadin and now Eliquis for 10 years. Either of my doc’s has cautioned me of a potential problem. Perhaps a second opinion

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Replies to "I have dry AMD in my left eye and wet AMD in my right eye, diagnosed..."

Dear downeaster, thanks very much for your encouraging reply. It certainly seems to the "naked eye" like our situations are much alike.
I'd love to know more about your eye history – whether your AMD handicaps you in your function, at what stage you were diagnosed and where you are. being treated (both for your AMD, wet and dry, and AFIB).

I've definitely noted that the quality of ones physicians make a significant difference in outcomes. For example: my mother who is totally blind now from wet macular degeneration – not even any peripheral vision – was most fortunate in landing after her diagnosis decades ago in the practice of an expert retinalogist in Sarasota, FL (Florida with all its seniors is blessed with many of the best practitioners in all geriatric fields).

He was unique at the time in being aware of the off-label use of Avastin for AMD, wet and dry – I believe he imported it from overseas. Thanks to his acumen, her vision was preserved at least ten years longer than friends diagnosed at the same time she was.

Might I write you to compare notes? Not sure how to go about it through this very useful "Connect" site, but there must be a way. A similar site dealing with complex spinal surgery helped me immensely six years ago, in navigating choices – surgeon, hospitals, pointers about how to prepare, etc.). What my options were, and above all, the pros and cons of daring to proceed with that very dangerous surgery – nine hours for me (all too often leading to paralysis, increased pain and other irreversible negative consequences even many years after the initial surgery). Patient to patient outreach in such medical decisions can be life-saving/sight saving – not to replace the guidance of an MD but to supplement it. There are many controversial aspects about which patients are rarely adequately informed.

Before signing off, though, please clarify what I suppose is a confusing typo. You wrote of your physicians, "Either of my docs has cautioned me…" and I suspect you meant "Neither…" Which is it?

Many thanks again!

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