1. < Neuropathy
Profile picture for Colleen Young, Connect Director
Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for John, Volunteer Mentor
Mentor
John, Volunteer Mentor | @johnbishop | Nov 18, 2021
In reply to @jeep "Hi, I'm just now entering this world of foot neuropathy and I am hoping to hear..." + (show)
Profile picture for Jeep @jeep

Hi, I'm just now entering this world of foot neuropathy and I am hoping to hear from others on how they deal with this blessing. Thanks for any advice / assurances! Jeep

Jump to this post

Hello @jeep, I see that it has been awhile since you have posted on Connect. I'm sorry to hear you are now entering the world of neuropathy in your feet. You mentioned having a Pineal Cyst in your earlier post. I found an interesting article supporting the description in your earlier post - "I say that the area in our heads is prime real estate and anything extra in there can cause symptoms.".

Pineal Cysts: Worth a Second Look:
-- https://muschealth.org/health-professionals/progressnotes/2018/spring/features/pineal-cysts

Have you now been diagnosed with neuropathy or do your doctors think the new symptoms are related to your Pineal Cyst?

REPLY
1 reply
Profile picture for levisdad
levisdad | @levisdad | Nov 18, 2021
In reply to @johnbishop "Hello @jeep, I see that it has been awhile since you have posted on Connect. I'm..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

Hello @jeep, I see that it has been awhile since you have posted on Connect. I'm sorry to hear you are now entering the world of neuropathy in your feet. You mentioned having a Pineal Cyst in your earlier post. I found an interesting article supporting the description in your earlier post - "I say that the area in our heads is prime real estate and anything extra in there can cause symptoms.".

Pineal Cysts: Worth a Second Look:
-- https://muschealth.org/health-professionals/progressnotes/2018/spring/features/pineal-cysts

Have you now been diagnosed with neuropathy or do your doctors think the new symptoms are related to your Pineal Cyst?

Jump to this post

diagnostical results from testing

REPLY
1 reply
Profile picture for d13
d13 | @d13 | Nov 18, 2021
In reply to @ubelinda "I have peripheral neuropathy and pain in legs and numbness in fingers, and would like to..." + (show)
Profile picture for ubelinda @ubelinda

I have peripheral neuropathy and pain in legs and numbness in fingers, and would like to know try this roll on. Is this prescribed or could I just purchase and where? Thank you and blessings. Ubelinda

Jump to this post

I will need to ask my daughter where she purchased. I don't know about putting it on the hands. It is suggested not to rub the eyes after applying. Even when I roll it on my feet, I massage it in by just using both feet; one over and under the other one. So I never get it on my hands. I will get back with an answer about where you can purchase asap.

REPLY
1 reply
Profile picture for John, Volunteer Mentor
Mentor
John, Volunteer Mentor | @johnbishop | Nov 18, 2021
In reply to @levisdad "diagnostical results from testing" + (show)
Profile picture for levisdad @levisdad

diagnostical results from testing

Jump to this post

Hello @levisdad, Welcome to Connect. Am I correct that your neuropathy diagnosis was from diagnostical results from testing? Did you have an Electromyogram (EMG) Test & Nerve Conduction Study (NCS)?

REPLY
Profile picture for ubelinda
ubelinda | @ubelinda | Nov 19, 2021
In reply to @d13 "I will need to ask my daughter where she purchased. I don't know about putting it..." + (show)
Profile picture for d13 @d13

I will need to ask my daughter where she purchased. I don't know about putting it on the hands. It is suggested not to rub the eyes after applying. Even when I roll it on my feet, I massage it in by just using both feet; one over and under the other one. So I never get it on my hands. I will get back with an answer about where you can purchase asap.

Jump to this post

Thank you for answering! I would rub it in my legs and feet, where the pain is. Blessings.

REPLY
1 reply
Profile picture for d13
d13 | @d13 | Nov 19, 2021
In reply to @ubelinda "Thank you for answering! I would rub it in my legs and feet, where the pain..." + (show)
Profile picture for ubelinda @ubelinda

Thank you for answering! I would rub it in my legs and feet, where the pain is. Blessings.

Jump to this post

She told me that she got it at a cannabis shop. So that would be the place to look for it. Dragon deep tissue salve roll up. Ingredients; cocoa butter, camphor oil, menthol, cannabis extracted oil. 3.4 oz. I don't know if you can get it online. You could google it. I sometimes wait an hour after applying and then apply again. Right before going to bed works the best for me. Good luck finding it. And hope it makes you feel better.

REPLY
1 reply
Profile picture for ubelinda
ubelinda | @ubelinda | Nov 19, 2021
In reply to @d13 "She told me that she got it at a cannabis shop. So that would be the..." + (show)
Profile picture for d13 @d13

She told me that she got it at a cannabis shop. So that would be the place to look for it. Dragon deep tissue salve roll up. Ingredients; cocoa butter, camphor oil, menthol, cannabis extracted oil. 3.4 oz. I don't know if you can get it online. You could google it. I sometimes wait an hour after applying and then apply again. Right before going to bed works the best for me. Good luck finding it. And hope it makes you feel better.

Jump to this post

Thank you! Will look for this and try it. Blessings.

REPLY
1 reply
Profile picture for athenalee
athenalee | @athenalee | Nov 20, 2021
In reply to @ubelinda "Thank you! Will look for this and try it. Blessings." + (show)
Profile picture for ubelinda @ubelinda

Thank you! Will look for this and try it. Blessings.

Jump to this post

Its available online if you can’t find it locally.

REPLY
1 reply
Profile picture for ubelinda
ubelinda | @ubelinda | Nov 20, 2021
In reply to @athenalee "Its available online if you can’t find it locally." + (show)
Profile picture for athenalee @athenalee

Its available online if you can’t find it locally.

Jump to this post

Thank you! Blessings.

REPLY
Please sign in or register to post a reply.