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I’m not sure what I wrote about anything Did I write about the surgery squeezing me in as the last patient on surgery day because things were getting worse very fast I saw the surgeon on June 28 he scheduled for surgery on June 29th.
It was going to be cataract surgery which puzzled me because for 10 years or so I was told I had a very small cortical cataract sometimes not even mentioned by eye doctors and was often told “ surgery is always risky and it should only be done when the cataract are so bad you can’t see.
I read online by an eye doctor group a list of eye conditions that most people never hear about including a great discription of many of the ones discovered and talked about here after most patients spent months or years trying new doctors until they find one who helps them I recall reading that one here that I responded to in my typical long winded reply because that’s what I do. I think I should apologize to everyone that I offend or bore with this extra long replies.
I have found it VERY INTERESTING not only how many people are not diagnosed or misdiagnosed and in several cases the same thi MGUS happened after cataract surgery: something else is discovered that was not seen or none until after cataract surgery. One “ FRIEND “ who I was introduced to by SENIOR RESOURSES TO help me with my mail told me she had a very bad case of “ wet Mac degeneration “ which was only DX’d AFTER the cataract surgery. If that could be me then take that “ baby cataract out “
It is startling and amazing how attached some doctors on to their beliefs.
The doctor group who has all of these eye malfunctions written about on the website didn’t think it was a good idea to take it out the neuro-opthomologist that I was referred to and was speculating that my vision problem was do to my prostate cancer absolutely Anf strongly was against the cataract surgery. We had a four way conversation with my world renowned prostate cancer doctor who put the referral in for neuro-opthomology based on the opinion from the group who had all of fed articles posted on line but I don’t know how to explain how convoluted everything was becoming and like the VA the doctors who I thought of as allies seemed to be turning on me, just what I needed.
The surgeon strongly suggested general anesthesia. The anesthesiologists thought a local cocktail was better that the general. The surgeon said he didn’t care as long as I didn’t move.
They peeped me and I asked the surgeon is I could have a piece of the cataract so I could study it.
Not know for his “ bedside manner he started yelling at me saying things like YOUR NOT A DOCTOR WHATS WRONG WITH. YOU TO ASK FIR SUCH THING AND THAT THE DURGERY PULVERIZES THE CATARACT and it’s vacuumed out so not of. What I wanted could happen and “ it’s time to shut up” so he could begin and he already set aside extra time past his normal quitting time so he wanted to get this done so he could go home. At the 30 minute mark he announced that it was done because I was so still he did the operation I n half the time he had allotted.
He didn’t know I was totally awake, SAW, heard, smelled and FELT every part of the operation. Had it not been for meditation techniques that I learned I would have been SCREAMING. After the operation I had no voice, couldn’t swallow or drink anything for at least 30 minutes and after his last test he beat it out of there. I’ve been messed up and traumatized ever since.
As kind as this post is I haven’t told you half of what resulted especially the apology from the Neuro doc who admitted her speculation was wrong.
I’m really messed up from all of this
Stuck….just STUCK
Replies to "I’m not sure what I wrote about anything Did I write about the surgery squeezing me..."
Hi Stuck, I'm so sorry to hear that your eye issues are not getting better and about the lack of patient-doctor partnership with your providers. I'm very worried about your "driving by braille." That sounds dangerous for you and for others. Have you looked into Area Agencies on Aging? Here is a directory https://www.agingcare.com/local/area-agency-on-aging
I can imagine you feel traumatized. Do you have people (family and friends) who are supporting you during your recovery?