Living with Neuropathy - Welcome to the group

Hi. I have tarsal tunnel syndrome probably caused by fallen arches which made my flat feet even flatter. The left foot is much worse than the right. The left foot is much flatter than the right. I have had 3 decompressions on my left foot with no results. Not even from day 1. This all happened 4 yrs ago after my second tkr. My feet are constant freezing, burning, tingling all at the same time. Nothing helps. 600 mg gabapentin 3 times day. R-lipoic acid, b complex vitamins. I am probably literally walking on my nerves. Same with or without my orthotics. PT to eliminate scar tissue but no help with sympthoms. I am literally at wits end. Any suggestions!

@kp6350 I would take a look at the amount of vitamin B6 in the B complex vitamins you are taking along with B6 in any food. It is one of the vitamins that can induce peripheral neuropahy if you get too much (toxicity) or have a deficiency. More info here - Vitamin B6 Toxicity: https://www.ncbi.nlm.nih.gov/books/NBK554500/

Have you seen or heard about Myofascial Release Therapy? Others like @artscaping may be able to share how it's helped their symptoms.

Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

I am at a loss as to what to do. My PCP assured me my B vitamin levels were good. No need for supplements. An acupuncturist that I have been seeing ( BTW not helping) assured me that any extra b vitamins my body would secrete. Who and what do you believe. I just want help with this and no one and nothing helps. One person contradicts the other.

Any treatments for gum neuropathy, had for year.

Hello @jabax, Welcome to Connect. It must be frustrating to have neuropathy in your gums for a year and not found any treatments that help. Have you been diagnosed with Trigeminal Neuralgia or something else?

I have peripheral neuropathy in my feet that came on all of a sudden in May 2019. It is gradually getting worse. Symptoms are numbness -- not really any pain or tinging just straight numbness. I feel it mainly when standing not sitting. It is worst first thing in the morning when standing when getting out of bed.

My frustration is not being able to find a cause.

Possible causes:

1) Low B12 - while I have low B12, I take shots and B12 is fine with the shots.
2) Blood sugar - fasting glucose is usually around 104, which is a bit high, but A1C is within range.
3) Alcohol - I do not drink at all since 1995
4) Circulation - my doctor says it is fine.
5) Lower back - I do have some issues in my lower back, but people examining MRIs cannot see a major problem.

None of the above is a "smoking gun".

I don't know what else to do to try to find a cause.

My neuropathy in my feet came about with having chemotherapy for breast cancer. I only had two treatments, but caused alot of nerve damage. I also only have the numbness, mostly in my left foot, because of having a little nerve damage mostly on the top of my big toe area due to a sciatic nerve problem many years ago. My daughter gave me some roll on salve to try. It is helping with the hot sensations I get mostly at night. And with the numbness. It's called Dragon deep tissue salve. It contains camphor oil plus menthol, 300mg THC + 300MG CBD + 20mg CBN It is a roll up stick; 3.4oz. It is legal in Washington state, so it must be also legal in other states as well. It sells under the name of Nano emulsified cannabinoids. Roll - up dragon balm. It helps me, so it could help others with the numbness as well.