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Erythema Nodosum
I am suffering from painful nodules on the calf and feet. They are red and sore. Till I take HCQS 200 and Naproxen for pain, I feel better. Once I stop it, it flares up again. Worse in Nov and Dec. Anybody can help with a cure.
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I was diagnosed recently with Erythema Nodosum and currently still have nodules since the summer, with more appearing.. All of my labs were negative for anything that might be a possible "reason." I have found EN listed on the autoimmune registry, yet it does not specifically say it is an autoimmune disease on any literature or research I have found. Can anyone tell me if it IS an autoimmune disorder? I got the impression it was included on the list, because they sometimes can't determine what the cause of EN is from, in most cases.
I have had this diagnosed yesterday. How do I join this group?
Hi Kay, I think you have joined by posting in the discussion. Scroll to the top of the discussion and click the 3 dots in the lower right corner under the discussion description. If you see the option to Mute this discussion, you are subscribed to the discussion and will receive an email notification when someone makes a post here.
Since this is a discussion from 2016, you may also be interested the following newer discussions:
-- (2020) Erythema Nodosum: https://connect.mayoclinic.org/discussion/erythema-nodosum/
I'm so sorry to hear this. A lady I know suffers from the same thing. Hers flares up when she eats 'Night Shade' vegetables (peppers, tomatoes, potatoes, eggplants, etc.) but especially tomatoes-anything with cooked tomatoes causes her rash to flare up. Tomato sauce, salsa, etc. Maybe yours is a food allergy as well? You could Google 'Bio-Indigo feedback.' It's a machine that a practitioner (painlessly) hooks you up to while you sit/recline. It scans your body and can give you many answers in this respect. (You can't run it by yourself without loads of training.) Best of luck to you!
Does anyone have recommendations on how to connect to the correct doctor for help? I have seen dermatology / rheumatologist/ infectious disease/ endocrinology. Each doctor simply did blood work, and told me to rest since there may never be a root cause. I’m going on ten years of pain with EN, and have had two biopsy’s done. Each doctor I have been to wants to be helpful, but has rarely encountered it. Therefor I am not sure how to get to a provider who has background or knowledge in such erythema nodosum specific experiences. Better yet, when I do find a provider who does, how would I go about getting the referral or next steps. Thanks for all your help.
@kanaazpereira @kety this is from way back in 2016 but I just saw it, today.
Isn’t Thalidomide the drug that was given to pregnant women in the 1940’s to combat nausea, resulting in babies being born with missing and/or deformed limbs?