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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

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@mariannj

I haven’t posted since August 2021 when all was well with my Grovers. I mentioned that I had contracted GCA which put me on high doses of Prednisone beginning September 2020. The Prednisone led me down a dark alley of side effects and the latest is Avascular Necrosis of the hips (the bone ball of the femur, where it attaches to the hip, dies from lack of blood supply) so I have been pretty much sitting in a recliner to ease the pain while I wait for Ortho appointment. I walk with a walker. Needless to say, all the sitting has triggered my Grover’s again and this time it is also on my back. This began about a month ago and My Derm said it definitely was Grover’s. I began the daily cilantro smoothies, applied some Triamcinolone, tried Benadryl topical, Benadryl oral, and Gold Bond Medicated Powder. Nothing is helping this time. I reread some of the earlier posts and remembered to add the Chlorella. I also just ordered the cilantro drops today. I know what happened to me. I had been fooled into thinking I could stop the cilantro (I hate the taste). I wore synthetic material next to my skin, BAD BAD. The pressure from my bra left marks. (I had gained 40 pounds from the Prednisone and it is very hard to lose when I cannot move around). This meant my waists were also tighter. The perfect storm was brewing but I was too concerned with all my other side effects to think about Grovers. So here I am now. I found the Vanicream soap and lotion in the linen closet, am wearing only cotton next to my skin, and eliminating sulfites. (I had been eating onions, mushrooms and Brussel sprouts, forgetting they were bad.) This outbreak, 4 weeks in, is worse than the first time as it is now also on my back and extends down to my groin area and along both sides in addition to the front of my torso. One small dot can itch/burn/hurt as much as a cluster and I have multiple areas of both. I will never again become complacent about Grovers. I am pleased to see that gardeningjunkie is still helping others with great advice and I am grateful to kissmass1 and frogger for their helpful advice earlier in my game. I have found that an ice pack wrapped in a cotton pillowcase has helped my back at times. I now have 3 rare diseases, Grover’s, GCA and HLRCC (with very itchy leiomyomas). The first two are autoimmune and the last results from a genetic mutation. It is difficult for me to sit upright so I don’t spend much time on my computer, sad to say. The reason I am posting this is to say never become complacent about Grovers. It can come back worse than ever. Oh sigh, sigh, and double sigh!

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Replies to "I haven’t posted since August 2021 when all was well with my Grovers. I mentioned that..."

Very sorry to hear about your unfortunate situation.