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Lewy Body Dementia with Parkinson

Parkinson's Disease | Last Active: Mar 18, 2022 | Replies (48)

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@raebaby

I was the caregiver for my husband who passed away with Parkinson's and, we think, Lewy body dementia. We were married for 58 years. I'd be happy to give any info on what I learned. I was successful in handling his sun downing.

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Replies to "I was the caregiver for my husband who passed away with Parkinson's and, we think, Lewy..."

@raebaby how generous of you to offer to help others! I’m sure that you will have lots of information that will be invaluable to others. I know the years of Parkinson’s and Lewy body dementia had to be tough on you.
How are you doing now that your husband is gone after 58 years together?

The Sundowner Syndrome is a nightly problem that I have to really be patient with. At least, it keeps he busy. Currently, I am having problems with my wife's hallucinations. This goes on for about 2 to 4 hours each night and if I am not careful with what I say, she gets very angry. It usually involves impossible happenings in and around the lake behind our house and she wants to call the police or HOA to report it.