Lichen Simplex Chronicus: What treatments did you receive?

Posted by alexis @lexonpark, Feb 16, 2020

I Posted early in Jan about a rash on Gammagard. Internist sent me to Derm, my regular doctor wasn't available didn't think I needed a biopsy gave me an RX for cortisone cream, didn't help. Saw the Rheumatologist didn't know what was going on. He suggested a biopsy. Hematologist thinks it was Gammagard. He also suggested a biopsy. I went back to the Dermatologist and saw my regular doctor for a biopsy, came back as Lichen Simplex Chronicus and referred me back to Rheumatologist. Has anyone been diagnosed with Lichen Simplex Chronicus and what treatment did you receive?

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KateG | @gingerbear22 | Nov 11, 2021

In reply to @yellowdoggirl "Oh, my error, lichen simplex chronicus?" + (show)

No, photos above relate to a diagnosis of lichen schlerosis

yellowdoggirl | @yellowdoggirl | Nov 12, 2021

Got it, thanks!

dermnurse68 | @dermnurse68 | Nov 12, 2021

In reply to @gingerbear22 "No, photos above relate to a diagnosis of lichen schlerosis" + (show)

Have you been to a good dermatologist?

KateG | @gingerbear22 | Jan 30, 2022

In reply to @gingerbear22 "Here are photos. No itching. Just discoloration and spreading." + (show)

Update. Since November these red marks have morphed in to tight bands of scaly skin. Another trip to dermatologist, another biopsy, this time on my lower back. I’m being referred back to my rheumatologist for possible systemic immunosuppressant.

Colleen Young, Connect Director | @colleenyoung | Jan 31, 2022

In reply to @gingerbear22 "Update. Since November these red marks have morphed in to tight bands of scaly skin. Another..." + (show)

Kate, I appreciate the update, but share your disappointment that it is not yet resolved. I’m hopeful that your dermatologist and rheumatologist are working together to find a solution.

KateG | @gingerbear22 | May 15, 2023

In reply to @colleenyoung "Kate, I appreciate the update, but share your disappointment that it is not yet resolved. I’m..." + (show)

As of today, after 15 months on a weekly dose of 20mg methotrexate, my dermatologist and rheumatologist and I agree that quieted down all extra-genital inflammation and new lesions! I’ll see my gyn in a couple months and see what she thinks from her point of view.