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@pstut

Hello, thank you for the sweet reply. I really should exercise more and I’m sure that would give me more energy to feel better and would help to take better care of myself. I do like to read and Mom and I watch tv shows together and that is relaxing. I actually brought her to the ER yesterday as she was so, so weak and her O was dropping significantly and not recovering. I could tell something wasn’t right. They are treating her for pneumonia, but they are not convinced that is what it is. Her poor lungs are worse than what they were a month ago according to CT scans. One of the brain tumors has shrunk so that is a blessing. They admitted her last night and are giving her a strong regimen of antibiotics. The pulmonologist has increased her decadron from 1mg that she was on, per oncologist, to 4mg and will start her on small doses of morphine because that can help the shortness of breath… does anyone know much about morphine? She has not been given that yet. Palliative care came in as well and we went over paperwork and she explained some of that to us….that is never an easy conversation. Mom would not want to be on a ventilator if something were to happen. There is so much going on in her poor body:( We are trying to take one thing at a time. I’m thankful I brought her in. I was pretty nervous at home and very worried about her. I hate cancer. It is horrible…. All of the side effects and complications that come with it is unbelievable. Thank
you for listening. It is a nice place to get things out and bounce ideas off of one another. I wish you all well.

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Replies to "Hello, thank you for the sweet reply. I really should exercise more and I’m sure that..."

Ooh, I don't know which is more scary, the dropping O2, or all the additional meds. With decadron, make sure they closely monitor her blood sugar, it tends to rise even in non-diabetics. Also, morphine can tend to lessen the frightening feeling of not getting enough air by relaxing the person, but can have other side effects. My Mom tolerated sublingual drops well near the end, but they made both of her sisters hallucinate or get combative.

My sister and I never regretted one moment of the time we spent with our Mom in her last years, no matter how hard it was. We also had some help from our brothers and my girls. The time spent talking to her was so precious that it was easy to tolerate the hard times. At the end, as she let me know how tired she was, it was easier to let her slip away after a long decline. It was much harder with our Dad, who declined more quickly, but again we were blessed to be with him.

What you are doing, especially including your husband and kids, sends a wonderful message to your children, that caring for others is part of the cycle of life.

I will keep you in my thoughts as you go through these difficult days.
Sue