Is anyone else diagnosed with PMR experiencing weakness in their legs?

Hi, John,
Well, your information is good news/bad news, I guess. But at least it gives me a little more faith in my doctor. As for age, I also am 78. But for the past 13 years I"ve been working in our library, and it is necessary to get down to the ground often. Until now, that has never been an issue. This came on very suddenly. I only knew it was related to whatever it is I'm dealing with. I do wish my PCP would mention referring me to a rheumatologist. So far nothing. How do I approach that diplomatically?

I was diagnosed with PMR 20 months ago. I am presently on 4 mgs Prednisone. Yesterday I was shopping in Walmart and did a lot of walking (I am 79). When it came time to get in my car my left leg behind my knee cramped so much I had to drag it in. Then last night I was woken up with my right leg cramping behind my knee. The pain was so bad that I was crying. I've had two children by the Lamaze method (no drugs) and this was as painful as that. Luckily I was able to message the leg until the pain eased up. I do have neuropathy in both legs due to chemo. This morning I have no problems with them, but I know that walking long distances bothers my knees and ankles, which swell because of arthritis.

I was diagnosed with PMR 20 months ago. I am presently on 4 mgs Prednisone. Yesterday I was shopping in Walmart and did a lot of walking (I am 79). When it came time to get in my car my left leg behind my knee cramped so much I had to drag it in. Then last night I was woken up with my right leg cramping behind my knee. The pain was so bad that I was crying. I've had two children by the Lamaze method (no drugs) and this was as painful as that. Luckily I was able to message the leg until the pain eased up. I do have neuropathy in both legs due to chemo. This morning I have no problems with them, but I know that walking long distances bothers my knees and ankles, which swell because of arthritis.

I had the opportunity to listen to and meet a great doctor with a patients heart at Mayo a few years ago at a social media gathering. He has a website with lots of great information and some possible approaches that might come in handy when you meet with your doctor. Check out these pages...

Tools for the Visit: https://patientrevolution.org/visit-tools
Communication Barriers: https://patientrevolution.org/barriers

Hi, John,
Just wanted to tell you that the link of Nov 6 for communicating with your doctor was very helpful to me. I watched it and got the tools I needed to ask my PCP for a referral to a Rheumatologist. Thank you very much. Now, I just hope I have asked for the right Rheumatologist!

Yes, I most certainly will. Especially since I'm not sure what I'm looking for in a good Rheumatologist. You might have some good insight on that, I would think!

Since my diagnosis in early 2020 I have always had weakness in my legs. During Prednisone but it eased when I was in remission for 6 months and now again while I am out of remission but not on Prednisone as the pain is tolerable. I have used a stick at times and had a fall. I go dog walking every day and this has helped. I also have a regular cramp in my left leg.
I don’t live in the US but in a small country with more limited medical services unless you can pay so don’t have access to the same resources. This type of forum is very helpful thank you.