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Liver transplant - Let's support each other
Transplants | Last Active: 1 day ago | Replies (1617)Comment receiving replies
Hi Rosemary! I haven’t yet. I’m hoping there’s a preference you can set for who you host, but i haven’t gone far enough in the registration to find out. I was hoping for some feedback first. I think the Mayo hospitality house is ideal, but it looks really small for the number of transplants they do here. What do patients/families do if it’s booked? We have two bedrooms and a nursery/toddler room so we could host a family. Does the hospitality house support that? I realize now how blessed we are to live so close. Would like to do what we can to help someone else.
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Hi Gaylene, my name is Bryan and I’m finishing up testing to hopefully get listed. We live in California but are planning on choosing Mayo Phoenix. Our coverage provides lodging at a place like the Residence Inn in Scottsdale but we are thinking about the option of an Airbnb so I’d be curious to know what you learn.
To everyone, hello! My MELD is at 26 right now and I have a few tests left but hoping based on what my transplant Doc says to get out there soon. We shall see. Regardless, I’m thankful to find this group to learn from. My Wife is a medical professional so she helps me understand the numbers and tests, but the actual experiences from all of you are a found blessing. So thank you.