Radiation Lung Fibrosis, Bronchiectasis, Traction Bronchiectasis

I would like to go to Mayo but with all he congestion at this time, I can't stay away from nebulizer and smart vest for more than about 4 hours during the day. I live in NC.
Which Mayo do you go to?

I would like to go to Mayo but with all he congestion at this time, I can't stay away from nebulizer and smart vest for more than about 4 hours during the day. I live in NC.
Which Mayo do you go to?

I guess I was lucky -- I got in quickly -- 4 days. It was consultation to begin with but after the consult they sent me for a lung x-ray and there were a number of doctors involved (at least 3 -- maybe more) and they told me immediately what the problem was and then they set me up with a pulmonologist there. It was a few weeks before that appt if I remember correctly but -- not long. They told me "You do not have cancer -- you have bronchiectasis". that was good news to me because of course I was fearful in that I had been sick a few years and had lost tremendous weight and had seen many specialists in about 100 miles of here. Had gotten nowhere. I've been back only 3 or 4 times but it's a long drive from here. I can keep in touch with my doctor there through the portal they use and he answers quickly. If I call, his staff is very good too. I plan to go back as soon as Covid settles down a little. I'll be anxious to know how you feel after you've been there. Be sure to post about your experience. Jan

Thank you for letting me know., I actually have an appointment there on Dec 8th with but not with Dr Daniels. I thought the broncholithesis focus at CH had just started I am only about 3 hours away.

I would recommend Mayo Clinic in Jacksonville. They are the ones that diagnosed me with MAC and bronchiectusis. I was getting sick with bronchitis and pneumonia frequently, but my Doctors in the Chicago suburbs or Naples FL never mentioned that I may have these issues. I was really shocked to find out that there was a named disease for this issue. But, I have been resisting the drug treatments because all of the antibiotics can't be doing your body any good. All the pulmonologists seem to be recommending, and trained to prescribe the 3-4 antibiotics a day program for a year or 18 months. I have several good friends that have been on the program and it was not helpful to them. It doesn't get rid of any issues, you just have to keep using the drugs for the rest of your life. Other friends, have had major side effects, some not even being able to tolerate the drugs. There has to be a better solution!

thank you . This info is helpful. I too had the bronchiectasis for several years before I was diagnosed.
Apparently the doctors knew but they did not tell me. I changed primary doc and pulmonologist.

I would recommend Mayo Clinic in Jacksonville. They are the ones that diagnosed me with MAC and bronchiectusis. I was getting sick with bronchitis and pneumonia frequently, but my Doctors in the Chicago suburbs or Naples FL never mentioned that I may have these issues. I was really shocked to find out that there was a named disease for this issue. But, I have been resisting the drug treatments because all of the antibiotics can't be doing your body any good. All the pulmonologists seem to be recommending, and trained to prescribe the 3-4 antibiotics a day program for a year or 18 months. I have several good friends that have been on the program and it was not helpful to them. It doesn't get rid of any issues, you just have to keep using the drugs for the rest of your life. Other friends, have had major side effects, some not even being able to tolerate the drugs. There has to be a better solution!