1. < Diabetes & Endocrine System

Thyroid? Or something else? Constant internal shakiness

Posted by amtxo1989 @amtxo1989, Feb 26, 2018

Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what's happening when the episodes happen. So far my doctors are clueless.

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mamala4444 | @mamala4444 | Oct 30, 2021

I am interested in Louis body disease and information on this awful unknown disease. Thank you it is the second leading cause of dementia in this country

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Oct 30, 2021
In reply to @mamala4444 "I am interested in Louis body disease and information on this awful unknown disease. Thank you..." + (show)
@mamala4444

I am interested in Louis body disease and information on this awful unknown disease. Thank you it is the second leading cause of dementia in this country

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Hi @mamala4444, Welcome to Connect. Since you mentioned you are interested in Lewy Body Dementia here are some discussions and information that you may find helpful.

-- New Export Blog: Dementia Hub & Lewy Body Event (free online): https://connect.mayoclinic.org/discussion/new-export-blog-dementia-hub-lewy-body-event-free-online/
-- Lewy Body Dementia Video Series: https://connect.mayoclinic.org/discussion/lewy-body-dementia-video-series/
-- Lewy Body Dementia Summit post-event video information: https://connect.mayoclinic.org/discussion/lewy-body-dementia-summit-post-event-video-information/

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krisjb1 | @krisjb1 | Oct 31, 2021

Electrotmagnetic sensitivity has been reported by people who have similar issues. Turn off your internet. See if that helps. Move bed away from wall wiring, etc.

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lmisch1985 | @lmisch1985 | Nov 2, 2021
In reply to @oregongirl "It appears that many doctors are clueless when it comes to pain and Autoimmune diseases. I..." + (show)
@oregongirl

It appears that many doctors are clueless when it comes to pain and Autoimmune diseases. I put off calling my doctor for two days now. All I have to say to her is I cannot take it anymore. I feel sorry for you Amtxo. I complained of serious withdrawal pain for three nights at the ER. They sent me home Next day, Gall Bladder was an urgent surgery. I was full of infection. We do not know what this does to our organs. Xanex is strong. I could not take it.

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I have seen a neurologist at mayo and have been tested for everything under the song. I do have hypothyroidism, Hashimoto’s thyroiditis, I was told I just have a natural tremor. That is more noticeable on my right side than my left and gets worse when I tired. I was told anti anxiety drugs would help as well as alcohol if I would
Want to drink that when I had soup. It gotten worse as I ace and when I am
Tired. I have a lot of other autoimmune issues as well. No one has ever tied it
To thyroid issues before

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1 reply
khali | @khali | Dec 26, 2021
In reply to @nancgdav "Hi @amtxo1989 , I saw your post and can totally relate to your symptoms I have..." + (show)
@nancgdav

Hi @amtxo1989 , I saw your post and can totally relate to your symptoms I have been struggling with these internal vibrations ( feels like a cell phone or bumblebees) for about 6 years, and have seen every type of doctors for it, including going to Stanford and have yet got an answer for it. But I do believe it has to do with Hashimotos disease or hypothyroidism, most everyone that I’ve found with these internal shakes have one or the other. I started with these shakes only in my arms and chest and only noticed them when I would first wake up, and then it started in my feet and now I get them more strongly in my throat and slightly in my head,. I am a 40 year old mother of 3 and I guess consider healthy and active but mentally drained with seeing so many doctors and it has started to give me daily anxiety, these shakes can cause so much worry because you feel it and no one know what it is. These are some of the test I’ve had and all came back normal: heart monitor, stress test, eeg (nerve conduction study) MRI of brain and spine , endoscopy and colonoscopy, thyroid ultrasound, all kinds of blood test, this is just because I know doctors are gonna have you do these one by one. The only thing I can advise you is to try and not let it control you life , I definitely did and it is so frustrating and mentally draining, the unknown and worrying only makes it worst, some people who also have this say stress makes it feel stronger. It was suggested from 2 different Doctors that acupuncture would help so I thought I’d give it a try I had my first visit and have 5 more to go, I will let you know if this helps, or If I ever find anything that makes it stop lol

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Please let me know it's driving me insane and affecting my cardiovascular 🫀 system also, mine is mostly in my head

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khali | @khali | Dec 26, 2021

Same here and it gets worse now 24/7 don't know what else to try

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khali | @khali | Dec 27, 2021
In reply to @lmisch1985 "I have seen a neurologist at mayo and have been tested for everything under the song...." + (show)
@lmisch1985

I have seen a neurologist at mayo and have been tested for everything under the song. I do have hypothyroidism, Hashimoto’s thyroiditis, I was told I just have a natural tremor. That is more noticeable on my right side than my left and gets worse when I tired. I was told anti anxiety drugs would help as well as alcohol if I would
Want to drink that when I had soup. It gotten worse as I ace and when I am
Tired. I have a lot of other autoimmune issues as well. No one has ever tied it
To thyroid issues before

Jump to this post

They all are clueless, have the same been to neurologist, nine endos, and done many tests and labs and nobody knows what it is, mine it's inner doesn't show outside my body and I get dizzy and affects my cardiovascular system. If you find answer pse let me know. Thank you

REPLY
1 reply
Mentor
Becky, Volunteer Mentor | @becsbuddy | Dec 28, 2021
In reply to @khali "They all are clueless, have the same been to neurologist, nine endos, and done many tests..." + (show)
@khali

They all are clueless, have the same been to neurologist, nine endos, and done many tests and labs and nobody knows what it is, mine it's inner doesn't show outside my body and I get dizzy and affects my cardiovascular system. If you find answer pse let me know. Thank you

Jump to this post

@khali @lmisch1985 your internal tremors sound awful and difficult to deal with. Do the tremors manifest themselves on the outside, like hand tremors or facial tremors? Have you had Covid-19? I found this interesting article about internal tremors in those who have had covid. The article is mostly about preliminary research and peoples’ responses, but it is interesting.
https://www.medrxiv.org/content/10.1101/2021.12.03.21267146v2.full-text
The facebook page mentioned might be very interesting.
The most important things i got out of the article is that you’re not alone and that someone is doing research!
Do you relate to anything in the article?

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2 replies
lmisch1985 | @lmisch1985 | Dec 28, 2021
In reply to @becsbuddy "@khali @lmisch1985 your internal tremors sound awful and difficult to deal with. Do the tremors manifest..." + (show)
@becsbuddy

@khali @lmisch1985 your internal tremors sound awful and difficult to deal with. Do the tremors manifest themselves on the outside, like hand tremors or facial tremors? Have you had Covid-19? I found this interesting article about internal tremors in those who have had covid. The article is mostly about preliminary research and peoples’ responses, but it is interesting.
https://www.medrxiv.org/content/10.1101/2021.12.03.21267146v2.full-text
The facebook page mentioned might be very interesting.
The most important things i got out of the article is that you’re not alone and that someone is doing research!
Do you relate to anything in the article?

Jump to this post

I’ve seen a neurologist when I was younger before I was diagnosed with thyroid issues. It’s mostly one side of my body, it’s natural tremor that has gotten worse with age. I’ve never had Covid thank god but I have a ton of medical problems. It’s most noticeable in my hands but it was able to be seen on a test on one side of my body. I could of had a thyroid problem at that time due to I have Hashimoto’s thyroiditis and it was discovered after a car accident and there was damage to my thyroid and it was unknown how long o had it. And back then where o was living the doctors never thought with all my symptoms that a teenage girl could have a thyroid problem. Just mono lol although that test was always negative.

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khali | @khali | Dec 28, 2021
In reply to @becsbuddy "@khali @lmisch1985 your internal tremors sound awful and difficult to deal with. Do the tremors manifest..." + (show)
@becsbuddy

@khali @lmisch1985 your internal tremors sound awful and difficult to deal with. Do the tremors manifest themselves on the outside, like hand tremors or facial tremors? Have you had Covid-19? I found this interesting article about internal tremors in those who have had covid. The article is mostly about preliminary research and peoples’ responses, but it is interesting.
https://www.medrxiv.org/content/10.1101/2021.12.03.21267146v2.full-text
The facebook page mentioned might be very interesting.
The most important things i got out of the article is that you’re not alone and that someone is doing research!
Do you relate to anything in the article?

Jump to this post

Hi, thank you for the info, my vibrations are not COVID related I am not vaccinated and I have this for a long time. Sometimes worse than other times. It is internal and does not show outside my body, it affects my cardio system, makes me dizzy and gives me headaches and nausea sometimes, horrible

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