Three and a half years into therapy weekly for the Conversion Tremors/DID diagnosis. The tremors are much better and when it happens now, I can accept that I am getting rid of excess energy my body can't handle. So while my head may be bobbing yes, yes, yes and my right arm may be doing a dance, it's okay, it is just who I am. I feel reading others posts, that I was so very blessed to have a neurologist who referred me to a Psychologist who specialized in Complex PTSD.
Having a Service Dog has been wonderful for me and in fact, may be a big clue to my healing process. As a person who has shown and trained dogs for years, it was a natural fit for me to research training a Psychiatric Service Dog for myself. My Apricot Standard Poodle Beau has been trained to let me know when I am going to have an "episode". I find a place to sit down, Beau will climb into my lap, lean into me with his 70 pounds of compression therapy and lick the back of my neck to help me stay present. Beau has also been very calming to me, his love comforts me in a way no human can.
Having a Psychologist who specializes in trauma and a Psychiatrist who also specializes in this area as well has been so good. It makes a difference if you have a Doc who believes there is a DID diagnosis. I am very grateful to mayo Clinic for the ongoing support you offer your patients. If it had not been for the trip to May in Rochester for a second opinion, I honestly don't believe I would feel as good as I do today. Still a work in progress, meditation has been helpful to me, walking with our three dogs, and gentle yoga. grandma has to keep moving so she can chase Grandpa and those Grandkids!
There is much hope, there are wonderful therapists who specialize, and we are the indomitable ones who got where we are today through lots of effort. There were only glimmers of good moments for decades for me. I am glad to know the curtain is lifting for me. I love each and every one of you that is here sharing, offering aide, struggling or just saying, "Hi, I am here."
Three and a half years into therapy weekly for the Conversion Tremors/DID diagnosis. The tremors are much better and when it happens now, I can accept that I am getting rid of excess energy my body can't handle. So while my head may be bobbing yes, yes, yes and my right arm may be doing a dance, it's okay, it is just who I am. I feel reading others posts, that I was so very blessed to have a neurologist who referred me to a Psychologist who specialized in Complex PTSD.
Having a Service Dog has been wonderful for me and in fact, may be a big clue to my healing process. As a person who has shown and trained dogs for years, it was a natural fit for me to research training a Psychiatric Service Dog for myself. My Apricot Standard Poodle Beau has been trained to let me know when I am going to have an "episode". I find a place to sit down, Beau will climb into my lap, lean into me with his 70 pounds of compression therapy and lick the back of my neck to help me stay present. Beau has also been very calming to me, his love comforts me in a way no human can.
Having a Psychologist who specializes in trauma and a Psychiatrist who also specializes in this area as well has been so good. It makes a difference if you have a Doc who believes there is a DID diagnosis. I am very grateful to mayo Clinic for the ongoing support you offer your patients. If it had not been for the trip to May in Rochester for a second opinion, I honestly don't believe I would feel as good as I do today. Still a work in progress, meditation has been helpful to me, walking with our three dogs, and gentle yoga. grandma has to keep moving so she can chase Grandpa and those Grandkids!
There is much hope, there are wonderful therapists who specialize, and we are the indomitable ones who got where we are today through lots of effort. There were only glimmers of good moments for decades for me. I am glad to know the curtain is lifting for me. I love each and every one of you that is here sharing, offering aide, struggling or just saying, "Hi, I am here."
@paulalina Thank you for telling us your experience. I am sure it has helped someone reading your post! There are many different paths we each take, and it sometimes takes a lot of work to find what is going to work for us as an individual. It's definitely not "one size fits all", is it!?
How wonderful the curtain is lifting for you. May it continue to do so.
Ginger
Diagnosed with PTSD 20+ years ago. Military related as well as other triggers. Have had a real difficult time with depression and anxiety not long after being discharged from Air Force. I am very sensitive, emotional at times and simply frustrated with life.
Diagnosed with PTSD 20+ years ago. Military related as well as other triggers. Have had a real difficult time with depression and anxiety not long after being discharged from Air Force. I am very sensitive, emotional at times and simply frustrated with life.
Although I also am a Vietnam vet I don't have PTSD but do run the gamut on emotions sometimes. One of the things that has helped me that is shared on the page is practicing optimism - things that give you peace and a sense of happiness. I had the opportunity to listen to this doctor speak a few years ago and he had some really good perspectives on how the brain works and things we can do to help ourselves. Thought you might find it helpful also.
Diagnosed with PTSD 20+ years ago. Military related as well as other triggers. Have had a real difficult time with depression and anxiety not long after being discharged from Air Force. I am very sensitive, emotional at times and simply frustrated with life.
Aloha - US Navy vet here -dont hold it against me!! You are not alone. Been living with PTSD - among other things- for a while. Definitely no fun. Have you found that things are worse over the last year or so? Many of my other vet fiends have found the last 18 months have been real stressors.
Have you talked to anyone lately about this?
I’m glad to chat with you if you want.
I have PTSD for multiple reasons. I was an EMT for a number of years, and saw a lot of grisly scenes, checking for pulses or signs of life on people in vehicles that were mangled, sitting with dead bodies, waiting for the coroner...; abuse by bosses; libel and slander; failed suicide attempts. I didn't serve in the military, so it's called civilian PTSD. I think everyone handles traumatic events in different ways, and it's very misunderstood. People with PTSD have to deal with judgment, criticism, being labeled. Recovery, I would think, could be long and hard, and is paired with mental health issues, which complicates things. For me, it exacerbates depression and anxiety. One thing has an effect on the other. In therapy I've learned that traumatic events from the distant past still affect my depression.
Although you may have given much comfort and care to patients, your experience clearly took from you. I am sorry. I hope you may get the care you need. I have PTSD from a stay in a Medicare A+ rehab/nursing home where I nearly died from internal bleeding. By the time they granted my pleas for a doctor (4 days) I had nearly a discernible blood pressure reading. I should have sued but I was sick at home for months and on my own, by then I had lost mail, overdue bills and home care I needed. Thanks for listening.
Hi, I'm Dannybee. I've had PTSD since I was 14. I'm 69 now. It was as a result of sexual abuse. I hated him and was afraid of him, and I wondered why no one could tell that I was different. I've had dreams where he was chasing me, then ID be chasing him with a butcher knife. The dreams have mostly faded away and I've forgiven him. I'm ok unless something awful triggers me. Are your experiences similar to mine? Ask me anything..😋
Please forgive me if I sounded that way to you, believe me, hurting you more or triggering things is the last thing I would do, that's not helpful for you and flashes me back as well. I thought since I'm pretty old I might have started this miserable journey before you and could save you some time and frustration (I had a therapist who wanted to take me on a riverboat cruise 2 weeks so she could write an article or book about my PTSD and and difficulty with medications not working or needing far beyond recommended dose)(antidepressant didn't work at all until a great Dr combined it with..ADDERALL...not something most psychos would dare do 20 yrs ago) I don't think books are helpful, some people don't learn anything that way, like me. Individual therapy might be helpful IF you miraculously found the right experienced one and it can't just be PTSD, it must be incest, self worth, pleasing people who are unplrasable, all of it! Again, please forgive any unintentional missteps I might have made, as you can see from dates, I'm new to this forum.
Parus, one last comment at the risk of upsetting others: you can "choose" to be a survivor and might do fairly well at it UNTIL you have a flashback or a nightmare but your conscious mind just doesn't have the ability to fix everything for the conscious mind. I've never been able to tell myself either of those was just in my mind until it was over, then sometimes I remember. Many is the night I can't get to sleep at all my brain is so afraid of a horrid, cruel dream.
Adderall! It might benefit those who need it. My experience has been that Adderall (long term) use can cause delusional thinking and schizophrenic behavior in some patients. Pease be careful in using any information that is not backed by data and research.
It has been a long time since I was last on here. Life has been really hard especially this last year. My mother died the day before my birthday on August 2nd with me by her side. She died needlessly and I failed her. It is only me and my brother and he lives in a different province so I have been the one responsible for ensuring she was cared for properly at her Nursing Home. There were problems within a few months of her moving in, major issues and I should have took action sooner! I failed her and now she is dead and most days I want to be with her! The feeling is not as strong now a days mainly due to my boyfriend having a stroke a month afterwards and he needs me. I forced myself to continue working until just before Christmas when I became sick myself so now I am on a sick leave.
I feel alone and full of rage and guilt and grief with no one to talk to. I am struggling with nightmares, intrusive thoughts, suicidal ideation and so much anger at myself. I have fibromyalgia as well as c-PTSD and addictions(in recovery).
I don’t know why I am writing on here! No one can bring her back, nor take away the pain. I failed her when she needed me to get her out of there! The day before she became ill I had finally gotten her on the transfer list to move her to another home! There lack of care not only killed her but robbed me of my chance to say goodbye or comfort her. I was told she had a mild chest infection and was resting comfortably on Friday and Saturday then when I go to visit on Sunday she is on oxygen and barely responsive! And because they had “accidentally laundered mom’s hearing aids” the week before, she died unable to hear me tell her it was okay! We had 5 MINUTES before she was given pain medication and became totally unresponsive, just breathing until that Tuesday. My brother was on the flight home when she died
I know she was ready to go but I am not ready for her to be gone! She was severely abused as a child and as a result was diagnosed when I was a child with what at the time was called Multiple Personality Disorder. For many years we had a difficult to non-existent relationship until I was an adult in my 30’s and we were able to reconnect and heal the hurts from the past. I finally had my mom, I finally felt loved and liked. He last thing I said to her before she stopped breathing was that she broke the cycle of abuse! She was the reason her grandchildren and great grandchildren had a childhood! My mom was far from perfect but she was one of the strongest women I have ever known!
Although I also am a Vietnam vet I don't have PTSD but do run the gamut on emotions sometimes. One of the things that has helped me that is shared on the page is practicing optimism - things that give you peace and a sense of happiness. I had the opportunity to listen to this doctor speak a few years ago and he had some really good perspectives on how the brain works and things we can do to help ourselves. Thought you might find it helpful also.
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Three and a half years into therapy weekly for the Conversion Tremors/DID diagnosis. The tremors are much better and when it happens now, I can accept that I am getting rid of excess energy my body can't handle. So while my head may be bobbing yes, yes, yes and my right arm may be doing a dance, it's okay, it is just who I am. I feel reading others posts, that I was so very blessed to have a neurologist who referred me to a Psychologist who specialized in Complex PTSD.
Having a Service Dog has been wonderful for me and in fact, may be a big clue to my healing process. As a person who has shown and trained dogs for years, it was a natural fit for me to research training a Psychiatric Service Dog for myself. My Apricot Standard Poodle Beau has been trained to let me know when I am going to have an "episode". I find a place to sit down, Beau will climb into my lap, lean into me with his 70 pounds of compression therapy and lick the back of my neck to help me stay present. Beau has also been very calming to me, his love comforts me in a way no human can.
Having a Psychologist who specializes in trauma and a Psychiatrist who also specializes in this area as well has been so good. It makes a difference if you have a Doc who believes there is a DID diagnosis. I am very grateful to mayo Clinic for the ongoing support you offer your patients. If it had not been for the trip to May in Rochester for a second opinion, I honestly don't believe I would feel as good as I do today. Still a work in progress, meditation has been helpful to me, walking with our three dogs, and gentle yoga. grandma has to keep moving so she can chase Grandpa and those Grandkids!
There is much hope, there are wonderful therapists who specialize, and we are the indomitable ones who got where we are today through lots of effort. There were only glimmers of good moments for decades for me. I am glad to know the curtain is lifting for me. I love each and every one of you that is here sharing, offering aide, struggling or just saying, "Hi, I am here."
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1 Reaction@paulalina Thank you for telling us your experience. I am sure it has helped someone reading your post! There are many different paths we each take, and it sometimes takes a lot of work to find what is going to work for us as an individual. It's definitely not "one size fits all", is it!?
How wonderful the curtain is lifting for you. May it continue to do so.
Ginger
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2 ReactionsDiagnosed with PTSD 20+ years ago. Military related as well as other triggers. Have had a real difficult time with depression and anxiety not long after being discharged from Air Force. I am very sensitive, emotional at times and simply frustrated with life.
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2 Reactions@rckleinsmith - Have you been able to find any treatments or activities that help you? I have a friend who suffers from PTSD from his service in Vietnam and his wife volunteers for the DAV organization. They have some information you might find helpful on their website - https://www.dav.org/veterans/resources/post-traumatic-stress-disorder-ptsd/
Although I also am a Vietnam vet I don't have PTSD but do run the gamut on emotions sometimes. One of the things that has helped me that is shared on the page is practicing optimism - things that give you peace and a sense of happiness. I had the opportunity to listen to this doctor speak a few years ago and he had some really good perspectives on how the brain works and things we can do to help ourselves. Thought you might find it helpful also.
Happy Brain: How to Overcome Our Neural Predispositions to Suffering
https://youtu.be/KZIGekgoaz4
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4 ReactionsAloha - US Navy vet here -dont hold it against me!! You are not alone. Been living with PTSD - among other things- for a while. Definitely no fun. Have you found that things are worse over the last year or so? Many of my other vet fiends have found the last 18 months have been real stressors.
Have you talked to anyone lately about this?
I’m glad to chat with you if you want.
Peace
Larry H.
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4 ReactionsAlthough you may have given much comfort and care to patients, your experience clearly took from you. I am sorry. I hope you may get the care you need. I have PTSD from a stay in a Medicare A+ rehab/nursing home where I nearly died from internal bleeding. By the time they granted my pleas for a doctor (4 days) I had nearly a discernible blood pressure reading. I should have sued but I was sick at home for months and on my own, by then I had lost mail, overdue bills and home care I needed. Thanks for listening.
Hi, I'm Dannybee. I've had PTSD since I was 14. I'm 69 now. It was as a result of sexual abuse. I hated him and was afraid of him, and I wondered why no one could tell that I was different. I've had dreams where he was chasing me, then ID be chasing him with a butcher knife. The dreams have mostly faded away and I've forgiven him. I'm ok unless something awful triggers me. Are your experiences similar to mine? Ask me anything..😋
Adderall! It might benefit those who need it. My experience has been that Adderall (long term) use can cause delusional thinking and schizophrenic behavior in some patients. Pease be careful in using any information that is not backed by data and research.
It has been a long time since I was last on here. Life has been really hard especially this last year. My mother died the day before my birthday on August 2nd with me by her side. She died needlessly and I failed her. It is only me and my brother and he lives in a different province so I have been the one responsible for ensuring she was cared for properly at her Nursing Home. There were problems within a few months of her moving in, major issues and I should have took action sooner! I failed her and now she is dead and most days I want to be with her! The feeling is not as strong now a days mainly due to my boyfriend having a stroke a month afterwards and he needs me. I forced myself to continue working until just before Christmas when I became sick myself so now I am on a sick leave.
I feel alone and full of rage and guilt and grief with no one to talk to. I am struggling with nightmares, intrusive thoughts, suicidal ideation and so much anger at myself. I have fibromyalgia as well as c-PTSD and addictions(in recovery).
I don’t know why I am writing on here! No one can bring her back, nor take away the pain. I failed her when she needed me to get her out of there! The day before she became ill I had finally gotten her on the transfer list to move her to another home! There lack of care not only killed her but robbed me of my chance to say goodbye or comfort her. I was told she had a mild chest infection and was resting comfortably on Friday and Saturday then when I go to visit on Sunday she is on oxygen and barely responsive! And because they had “accidentally laundered mom’s hearing aids” the week before, she died unable to hear me tell her it was okay! We had 5 MINUTES before she was given pain medication and became totally unresponsive, just breathing until that Tuesday. My brother was on the flight home when she died
I know she was ready to go but I am not ready for her to be gone! She was severely abused as a child and as a result was diagnosed when I was a child with what at the time was called Multiple Personality Disorder. For many years we had a difficult to non-existent relationship until I was an adult in my 30’s and we were able to reconnect and heal the hurts from the past. I finally had my mom, I finally felt loved and liked. He last thing I said to her before she stopped breathing was that she broke the cycle of abuse! She was the reason her grandchildren and great grandchildren had a childhood! My mom was far from perfect but she was one of the strongest women I have ever known!
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6 ReactionsI love the video. It is extremely helpful to me. I plan to watch it regularly (weekly) until I train my brain to "get it right" every time.
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2 Reactions