Connect
(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
I am new to Mayo online .. I was hoping to find others with .. MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE (MAC/MAI) and/or BRONCHIECTASIS. I found only 1 thread on mycobacterium accidently under the catagory "Lungs". I'm hoping by starting a subject matter directly related to MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE (MAC/MAI) I may find others out there!
I was diagnosed by a sputum culture August 2007 (but the culture result was accidentally misfiled until 2008!) with MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE (MAC/MAI) and BRONCHIECTASIS. I am now on 5 antibiotics. Working with Dr. Timothy Aksamit at Rochester Mayo Clinic .. he is a saint to have put up with me this long! I was terrified of the treatment . started the first antibiotic September 3, 2011 ... am now on all 5 antibiotics for 18 mos to 2 years. Am delighted at the very bearable side effects!
I wrote on the 1 thread I found: If you google NON-TUBERCULOUS MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE (MAC/MAI) you will learn a LOT about the disease. But PLEASE do NOT get scared about all the things you read .. that is what I did and nearly refused to do the treatment until after a 2nd Micomacterium was discovered! Educate yourself for "due diligence" .. but take it all with a grain of salt .. you are NOT necessarily going to have all the terrible side effects of the antibiotics! Good luck to you!
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
January 2017 Update
One of our great Connect Members .. @Paula_MAC2007 .. had a wonderfully helpful idea that I wanted to share! Her idea .. as you read through the pages to gather information on our shared disease of MAC you can develop a personal "file cabinet" for future reference without the necessity of reading all the pages again!
If you have the "MS Word" program on your computer:
- Document Title Example: Mayo Clinic Connect MAI/MAC Information
- Then develop different categories that make sense to you such as: Heath Aids .. Videos .. Healthy Living .. Positive Thinking .. Baseline Testing and Regular Testing .. Antibiotics ..
Tips for
- As you read the pages .. copy/paste/save things of interest into that MS Word document under your preferred categories for future reference.
Then as you want to refer back to something in the future .. YEAH! You have now created your own personal "file cabinet" on MAC/MAI! Go to it!
Like
Helpful
HugInterested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Connect
@toni68 Toni Ann this is what is Clear lung. (I found this natural product recommended by Dr Balch in his book Nutritional Healing. You can order on the web.
ClearLungs from Natural Alternatives is an herbal combination that helps provide relief from shortness of breath, tightness in the chest, and wheezing due to bronchial congestion. It is available in two formulas:one with ephredra and the other without.
They appear to be equally effective.
Toni this is how I discover the product and I try it and it work very good for me when I feel some of the symptom a little shortness in breath, or sputum coughing. I have never give a chance to the MAC to take over my lungs. The minute I have symptom
I have use this. I must say I have never been as sick as some of the member on this site. I have no other disease and take no medication. Hope this help ! nick
-
Like -
Helpful -
Hug
1 Reaction@megan you can read on AlleycatKate response from me how I have used Colloidal silver. I do not use most of the natural product constantly. I do not use echinacea anymore. I din’t get much success with it. Sometime I drink a cup of echinacea tea! I do
not use clear Lungs every day. If I have sputum or I felt shortness of breath I would take some for few days until I feel it is clear. That is how I was using clearlungs. The only thing I take right now for prevention is Dr Ohirra PROFESSIONAL probiotic.
ONE every night before bed. If I am in an environment of virus I take two a day. I am still doing supply teaching even though I am retired so when I am around kids you never know so I alternate 1 -2 1-2. I go with whatever I feel is best. Hope this help.
Megan if you feel you need to take it every day to prevent you may do that. I do not feel I needed every day. I will give you a company in South Elgin IL where you can call for info 1-847-697-0212 Natural Alternative company and her name is Sara. They
have good success with many of their high quality product. It might have a different name then Clear Lungs but you will certainly find some answer to your questions. Good Luck! The secrets is to treat it as soon as you feel a light symptom. Nick!
-
Like -
Helpful -
Hug
1 ReactionThanks Nick✌️
I’m interested in this Clear Lung.
Are you on antibiotics and take the Clear Lung?
Thank you for posting this.
-
Like -
Helpful -
Hug
1 Reaction@yayaaz no I have never been on antibiotic for MAC. If you are take the clear lung 4 hours and more before or after your antibiotic. My doctor here in Canada doesn’t recommand it unless you are severely infected. If you read my post of today I have given
you a phone number 1-847-697-0212 Natural Alternative in IL. Sara can guide you on Bronchial Formula. Good luck! Nick
FOR YOUR INFO THOSE INTERESTED,
For all those who are interested in herbal med for your lungs here is info received from this company. It is similar to Clear lung
Hello Nick, this is Sarah from Natural Alternatives.
Here is a link to another product I was telling you about, Chinese Lung Support. It helps strengthen weak lungs to allow them to heal:
https://www.naturessunshine.com/us/product/lung-support-tcm-concentrate-30-caps/1004/
Lung Support TCM Concentrate (30 Caps)
http://www.naturessunshine.com
Lung Support TCM is a concentrated Chinese herbal formula that supports the lungs and sinuses and offers additional benefits to the circulatory and urinary systems.
Another one to consider is our Respiratory System Pack. It contains Bronchial Formula, Chinese Lung Support, and other products that work together to support the lungs and respiratory function. Regardless of the illness you're working with, this is a very powerful combination:
https://www.naturessunshine.com/us/product/respiratory-system-pack-30-day/5386/
Respiratory System Pack (30 day)
http://www.naturessunshine.com
Try our targeted supplements for respiratory system health. Support lungs, sinuses and bronchials with powerful formulas.
The prices you see are RETAIL. When you decide to purchase, please select "become a member" and you'll get at least 30% off the retail prices!
If you have questions, please feel free to call or e-mail me back
thank you
Sarah
http://www.NaturalAlternatives.biz
847-697-0212
-
Like -
Helpful -
Hug
1 ReactionNick, could you tell me how many drops of colloidal silver you used? I've been adding it to the saline solution but just three drops. Thanks,
I ran it by my pulmonary doctor and she was all for it. Just said to get the dosage right. The turning you blue is exaggerated, I read, with the quality of silver on the market..
I nebulizing silver, just three drops and no problems so far but I haven't been doing it for long and I think the dosage is probably too little. If anyone can advice me on the dosage, that would be great.
@flib lol it is true (google BLUE MAN FROM SILVER) I saw the man on TV myself. The blue man he was called. I wouldn’t believe it neither but he was drinking some silver preparation and it drank it for many many years but not little dose like us. It wasn’t
COLLOIDAL silver but it’s own prep I think. The first kind I bought was like 10 ppm ( 1 tablespoon a day) the last 250 ppm (1 teaspoon a day) call 847-697-0212 for better info. There is good comments
on that Natural store. They would be able to recommend the dosage. I take the one recommanded on the bottle. I bought mine at the Vitamine discount store in Clearwater Fl., and the clerk was very knowledgable. I did my research on it before going back to
buy it. Nick
-
Like -
Helpful -
Hug
1 Reaction