Small Fiber Neuropathy: What helps?

Thank you for your response Chris! Like you, I do not like the idea of wasting the day zoning out! So I save my THC:CBD for night, but have heard small dosing during the day can help without the grogginess. I will try the topical from P & B for sure. Thank you for the suggestion. Yes, I often wake up during the night with achiness in my legs mainly. Life style wise, I used to exercise a lot. Now mainly walks, and I find yoga stretching really helps temporarily. Thank you for your tips!

ok, find another doctor. There is such a thing as idiopathic neuropathy and my neurologist says that is what I have and he treats it.

I have SFN with all of the usual symptoms but at some point during the day I get a "surge" of something going into my lower legs, ankles and feet. It is intense, makes walking extremely difficult. It can last a couple of hours or so and then goes away, back to "normal". Does this happen to anyone else and what/why is it? Thanks.

I have axonal sensory ..small fiber and autonomic neuropathies .all tested and confirmed ..thats where everything goes off key .its not in my feet ankle up .severe pain deep tearing pain .then all the sensory issues going on full body .no burning no numbness..itching crawling zapping vibrating ..with the 24/7 pain.and autonomic..unable to sweat so heat intolerance .always have to be cool no sun heat or hot water ever .high heart rate .gi issues bladder issues dizzy headaches insomnia..no mobility ..no dr does anything but shrug n stare like a fool .34 drs ..im just left an invalid for yrs ..crazy

Hello @lisa965, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I saw in your previous post that you mentioned taking Ciprofloxacin (?) and this was when your autonomic neuropathies started. I know that must be extremely difficult for you with all of the painful symptoms and not getting much help after seeing so many doctors.

Since you have seen so many different doctors, have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic where a multidisciplinary teamwork approach is used by doctors and specialists?

Well i was at alb med totally useless its taken me another 4 yrs to get a referral and insurance to approve me to go to mass general ..now weve spent 2 weeks trying to get these drs to fax records .no one has any records ??ridiculous what ive been through wasted my life over a uti

All my neuropathy issues were instant onset that 3rd day of cipro boom left here normal 4 hrs later i came home a different person n other than drs via med cab ive been locked up here since .i have no meds no pain relief no help ..im at the end of my rope ..the circus of drs ive dealt with is like medical negligence ..just ignore me ill go away .then no records nots in files ??bizarre ..instead of treating what testing proved i have .ive been sent for 100s of tests for everything on earth some multiple times .its not normal

Hello @one00100, Welcome to Connect. This is a reply to your post in another discussion - At a loss, multiple consultations still no answer...any idea? so that when you receive this email notification you will be viewing the Small Fiber Neuropathy discussion and can ask questions about your wife's small fiber neuropathy and learn what others have shared.

You may also find the following discussion helpful - Small Fiber Neuropathy BOOK!: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-book/

Can you share a little more about your wife's diagnosis and any treatments she has started?

I have SFN with no pain. I have been on Pregabalin for 2 months, currently 100mg, twice daily. So far it has only helped with tingling. There is no change to the tightness/numbness with my feet. I expected more relief from the Rx. Am I expecting too much? Anyone else in the same boat? Thanks.

My neurologist told me their are no medications that will help with numbness. Prior to be diagnosed with idiopathic small fiber PN, my PCP prescribed gabapentin which I took for 2 weeks and it did nothing for my numbness so I stopped taking it. There is another discussion on the numbness symptom you might want to read what other members have shared.

Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/