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Small Fiber Neuropathy: What helps?
Neuropathy | Last Active: Apr 16 9:40am | Replies (274)Comment receiving replies
I have axonal sensory ..small fiber and autonomic neuropathies .all tested and confirmed ..thats where everything goes off key .its not in my feet ankle up .severe pain deep tearing pain .then all the sensory issues going on full body .no burning no numbness..itching crawling zapping vibrating ..with the 24/7 pain.and autonomic..unable to sweat so heat intolerance .always have to be cool no sun heat or hot water ever .high heart rate .gi issues bladder issues dizzy headaches insomnia..no mobility ..no dr does anything but shrug n stare like a fool .34 drs ..im just left an invalid for yrs ..crazy
Replies to "I have axonal sensory ..small fiber and autonomic neuropathies .all tested and confirmed ..thats where everything..."
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Hello @lisa965, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I saw in your previous post that you mentioned taking Ciprofloxacin (?) and this was when your autonomic neuropathies started. I know that must be extremely difficult for you with all of the painful symptoms and not getting much help after seeing so many doctors.
Since you have seen so many different doctors, have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic where a multidisciplinary teamwork approach is used by doctors and specialists?