1. < Autoimmune Diseases

Nerve Pain

Posted by colorbug @colorbug, Sep 6, 2021

Almost all of my life I have experienced pain throughout my body. Doctors told my parents I had childhood arthritis (don't have). Told I was a nervous child because of the IBS issues. About the last 20 years have grown increasingly worse. I'm not diabetic but experience intense pain in my feet. But I experience that same pain all over my body. I feel as if I'm being pricked by thousands of needles. Currently taking Gabapentin but believe now it just makes me feel worse. Doctor wants me off Xanex and Tramadol. He put me back on antidepressants but that just seemed to cause greater anxiety. So I stopped taking them. I have tried eliminating med's that don't work. I don't sleep well at all even though I take OTC sleep aide's. Still trying to maintain so I can go to work. It is a horrible struggle. I have tried to get in to see a specialist such as a Rheumatologist or a Neurologist. But they won't see me saying my regular doctor can treat me. I'm desperate for help. The best I can do is soak in a tub of water. But it's hard to sleep like that. Water gets cold. I need help bad. I'm almost 63 and just don't see much hope on the horizon. Any suggestions is appreciated.

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steeldove | @steeldove | Oct 14, 2021
In reply to @noanswers "I live in Connecticut where would I find a nerve specialist?" + (show)
@noanswers

I live in Connecticut where would I find a nerve specialist?

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@noanswers If you can travel to Boston, try to get an appointment with Dr. Louise Oaklander

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2 replies
Mentor
Becky, Volunteer Mentor | @becsbuddy | Oct 14, 2021
In reply to @steeldove "@noanswers If you can travel to Boston, try to get an appointment with Dr. Louise Oaklander" + (show)
@steeldove

@noanswers If you can travel to Boston, try to get an appointment with Dr. Louise Oaklander

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@steeldove Can you tell us about her?

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steeldove | @steeldove | Oct 14, 2021

@becsbuddy I checked the Neuropathy Commons website and learned that Dr, Oaklander is not accepting new patients. BUMMER! But as Dr. Oaklander is considered the small fiber neuropathy Guru, it's always wise to take a look at Neuropathy Commons.

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noanswers | @noanswers | Oct 14, 2021
In reply to @steeldove "@noanswers If you can travel to Boston, try to get an appointment with Dr. Louise Oaklander" + (show)
@steeldove

@noanswers If you can travel to Boston, try to get an appointment with Dr. Louise Oaklander

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Thank you-I was also thinking maybe New York-I appreciate your suggestion

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noanswers | @noanswers | Oct 14, 2021
In reply to @becsbuddy "@noanswers Are you trying to find a nerve specialist or neurologist for a specific problem? You..." + (show)
@becsbuddy

@noanswers Are you trying to find a nerve specialist or neurologist for a specific problem? You might start by asking your GP for a referral to the best neurologist in the state. You can also google. “Medical centers of excellence in Connecticut”
Will you try it and get back to me?

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Hello-I have a neuromuscular neurologist but I heard someone suggest a nerve specialist-I really do suffer so with these complete body symptoms. My doctors are kind and trying but just don’t have any answer other then perhaps CPS but my symptoms are all presenting like neurology.

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1 reply
mnblue50 | @mnblue50 | Oct 15, 2021
In reply to @sueinmn "Here is a definition of a neurosurgeon - A neurosurgeon is trained in the diagnosis and..." + (show)
@sueinmn

Here is a definition of a neurosurgeon - A neurosurgeon is trained in the diagnosis and treatment of disorders of the brain, spine, spinal cord, nerves, intracranial, and intraspinal vasculature. A neurosurgeon may complete additional training with a Spine Fellowship and specialize in spine surgery (from: https://www.spine-health.com/glossary/neurosurgeon)
There is also a specialty called neurology, defined as: Neurologists are highly trained clinicians capable of diagnosing complex conditions through detailed history and physical examination, including testing of mental status, vision, speech, strength, sensation, coordination, reflexes, and gait. Even as medicine becomes more dependent on technology, the neurological exam will remain a critical component of the patient evaluation

A trained doctor may do both diagnosis and surgery, or just one of the two.

Perhaps you meant an orthopedic surgeon concentrates on bones?
Sue

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No, they are not educated in nerve disorders. That is a speciality within neurology. It is a very complicated speciality that demands a separate and arduous study.

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mnblue50 | @mnblue50 | Oct 15, 2021
In reply to @becsbuddy "@noanswers Are you trying to find a nerve specialist or neurologist for a specific problem? You..." + (show)
@becsbuddy

@noanswers Are you trying to find a nerve specialist or neurologist for a specific problem? You might start by asking your GP for a referral to the best neurologist in the state. You can also google. “Medical centers of excellence in Connecticut”
Will you try it and get back to me?

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Your GP is totally uneducated in nerve disorders. Find out through a teaching medical school.

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Oct 15, 2021
In reply to @noanswers "Hello-I have a neuromuscular neurologist but I heard someone suggest a nerve specialist-I really do suffer..." + (show)
@noanswers

Hello-I have a neuromuscular neurologist but I heard someone suggest a nerve specialist-I really do suffer so with these complete body symptoms. My doctors are kind and trying but just don’t have any answer other then perhaps CPS but my symptoms are all presenting like neurology.

Jump to this post

@noanswers Talk to your neuromuscular neurologist and find out the names of some nerve specialists! He should be able to help. Can you try that?

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2 replies
kenyalama | @kenyalama | Oct 15, 2021
In reply to @jakedduck1 "@kenyalama “Best friend”? That person wasn’t a best friend, far from it at least in my..." + (show)
@jakedduck1

@kenyalama
“Best friend”? That person wasn’t a best friend, far from it at least in my opinion.
Best and good friends like you as you are and they accept you problems and all. If I had to be that careful when talking to my friends because they are so sensitive and selfish and not make them uncomfortable then I don't want them anyway. Responsibilities come with being a friend especially a best friend. A best friend is ALWAYS there for you.
You come here, many members may have experienced the fear and the same problems you are facing and hopefully can ease your concerns.
Blessings,
Jake

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Thank you Jake!
I apologize for being so late in responding
I had a flood in my apartment building and had to move out
We will all keep fighting. We really understand each other

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noanswers | @noanswers | Oct 15, 2021
In reply to @becsbuddy "@noanswers Talk to your neuromuscular neurologist and find out the names of some nerve specialists! He..." + (show)
@becsbuddy

@noanswers Talk to your neuromuscular neurologist and find out the names of some nerve specialists! He should be able to help. Can you try that?

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Thank you so much-I see him the beginning of November ❤️🙏🏻

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