(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

@joan912 i also check a book received from a Pharmacist On contraindications if using  if you have different disease.  In the Ginseng section  it doesn’t talk about kidney as a contraindication .  It says  you should not use it if you have : hypertension, and

cardiac problem, diabetes, Asthma, 7 days before surgery, nose bleeding or  menstruations (over bleeding) pre-menopause with hormones cycles. I agree that a person must be careful using ginseng because of some Asthma is related to lung.  Be careful!  I would

says always check with your doctor but doctors do not study medications it is a pharmacist who is the expert and herbal medication is studied by naturopath.  Trust the right expert in medication. Nick 52

@nick52 and everyone. The Chinese have been using this root for thousands of years to treat a variety of illnesses. You can Google 'ginsing' and learn more about it. I like to use trusted sources like NIH.gov, Mayo Clinic, and University of Arizona Medical. One should always research any suggested remedies that they see posted here before trying them.

@tutti, hope you are doing ok like most of us just hanging out in the background of this sight and soaking up the information when we can. I have been on disability and medicare for 14 years. I had a back injury while doing private duty nursing trying to help a patient get out of bed. I had a failed back surgery after trying everything else. I tried different nursing jobs but could not continue working and taking medication. I was denied disability the first time and appealed on my own and was approved the second time around. I have heard they almost always say no the first try so keep appealing until you are get your benefits. MedIcare is a benefit that come along with my disability so if you are not getting it you should contact your social security office. They deduct the premiums from my checks. It's a secondary insurance to my husbands for me. I have treatment resistant deppression, anxiety and had a hard time concentrating and finding my words sometimes. I sought many opinions from many specialist and was taking mother with me to many of my appointments. A neurologist notice symptoms of Huntingtons chorea in my mother at my visit. We both were tested and have the defective gene and will develop debilitating symptoms as our brain cells die. Recently I had a knee and foot injury just doing chores at home i started loosing my balance and tripping over my own feet. My physical therapist is helping me and my walker is a necessity now. I love everyone in this community . Im trying to keep up to date on this sight but its very hard and sometimes i have to force myself to delete messages. I saved some messages for reviewing at a later date. I hope everyone's memorial day was a good one. If you cannot work you should get disability and Medicare through the social security office that you have already paid for. Take care and stay strong!
Becky

@chinasmom Hi Becky! Thank you for posting. That is generous of you considering weight of your own troubles. I am bummed to learn that you & your mom have the Huntington chorea gene. I hope it doesn't progress to a point that it is debilitating for you. Stay safe and be careful! I just read that you are falling into walls etc.

@suzie2017 I am sorry that you lost your mom at such a young age. That had to be very hard for you.

I am very familiar with Huntington chorea gene (HD). We learned about HD many years ago after my mother in law died in the 80’s. We thought she had alzheimers. Some years later my husband’s brother was diagnosed with HD and then another sister. In summary, my husband had 6 brothers and sisters and two sisters had it and one brother. My husband was tested several years ago and he tested negative. Right now I have two nieces and one nephew with it. Hopefully, Becky, you and your Mom never get any symptoms.

Some people test negative for HD but never get any symptoms. The symptoms come at any time but it is always different for every individual.

I meant to say, “some people test positive” for HD and never get any symptoms

Thank you @suzie2017 and @windwalker. Thanks for your kind words. I first thought she was having mini strokes and having hearing issues . The hearing aids helped alots but there was still something wrong. Moms has been in a nursing home about 6 years and on hospice since January. Me and my step dad took care of her for a year before she went to the home. My anxiety is winning the battle most of the time with fidgeting and hand clenching and pill rolling (where my forefinger and thumb keep making a motion like there is something beween them that I'm rolling into a ball) not being able to complete a task. ( I am unable to make or answer the phone calls and its hard to explain it because I don't understand it myself) . My slow speech and stutter are apparent signs. Now my fingers and toes are twiching and have a mind of their own all day and at night too. Recently i have been tripping over nothing and falling into walls and furniture. Mom had hulusinations and she only told me about them after her diagnosis.
She said she knew they weren't real. I thought HD was a rare disease, but just like ntm, people dont talk about them enough. Sights like these can do wonders so people dont feel alone even with an isolating disease. Well thanks to everyone for keeping the conversation going. Katemn would be proud and is always looking out for us.
Becky

I will keep you and your Mother in my prayers. I don’t know where you live but I do know that my sister in law goes to a very good HD clinic in Rochester, NY. So far, she is the oldest HD patient that have ever had. She is 83 and doing fairly well with HD.