Treatment: Kesimpta for 4 months and my symptoms have gotten worse. I know Kesimpta is not supposed to stop symptoms, but with the aggressive progression of my symptoms, (already using a cane, former athlete, 49) wouldn't I be progressive?
Treatment: Kesimpta for 4 months and my symptoms have gotten worse. I know Kesimpta is not supposed to stop symptoms, but with the aggressive progression of my symptoms, (already using a cane, former athlete, 49) wouldn't I be progressive?
@seanmay23 about a month ago you said that your symptoms were getting worse even on the Kesimpta. Have to had a chance to talk with your doctor? My current doctor is a neurologist with a speciality in MS. Will your doctor refer you to a specialist like this?
My situation is now as follows (diagnosed 5/23/21). I have an emergency basically. I'm going to be homeless. I need help. I'm divorced. My disability case has reached 9 months, and they are about to decide. If yes I'll be funded in approximately 4-6 weeks according to my attorney's Case Manager. It's leaning toward yes God willing. Either way, I'm I'm a terrible situation. Can anyone advise/help with advise on immediate funding, some direction, assisted living, housing, apartments (im in Clearwater, FL), counseling? I've yet to post anything prior because I've been hanging on quietly to be honest.
I'm a wreck.
My situation is now as follows (diagnosed 5/23/21). I have an emergency basically. I'm going to be homeless. I need help. I'm divorced. My disability case has reached 9 months, and they are about to decide. If yes I'll be funded in approximately 4-6 weeks according to my attorney's Case Manager. It's leaning toward yes God willing. Either way, I'm I'm a terrible situation. Can anyone advise/help with advise on immediate funding, some direction, assisted living, housing, apartments (im in Clearwater, FL), counseling? I've yet to post anything prior because I've been hanging on quietly to be honest.
I'm a wreck.
Hi Sean, I recommend that you type your Zip code into this search engine https://www.findhelp.org/
Find Help can help you find financial assistance, food pantries, medical care, and other free or reduced-cost help in your local area.
Welcome @flowergirl4167. Yes, there are other members here on Mayo Clinic Connect with mutliple sclerosis. I moved your message to this existing discussion so you can connect with @seanmay23@kco@helenlodahl and others.
I was diagnosed with MS in 2004. I stated Avonex interferon the day after my diagnosis and continued weekly injections through December 2021. Under guidance of my neurologist, I stopped Avonex (an immune suppressant) so that I can have a Covid-19 vaccine (an immune stimulant). We agreed that I am much more likely to die of Covid-19 than of MS since most people who have MS die WITH it instead of FROM it. Over the years I’ve learned ways to improve my nutrition, exercise, and sleep. My only advice to you is to remember that YOU have MS, but MS doesn’t have YOU. Also, please remember that MS has been around for a century at least, but the Medical Community still doesn’t know what causes it or how to prevent it. You are your own best doctor when it comes to wellness. The book titled Eat, Move, Sleep is very helpful.
Hi! I too have found connect not so connected but Colleen Young saves the day again. You aren't the only one with MS. I have RRMS. I'm happy to connect with you :).
Welcome @flowergirl4167. Yes, there are other members here on Mayo Clinic Connect with mutliple sclerosis. I moved your message to this existing discussion so you can connect with @seanmay23@kco@helenlodahl and others.
3 years. Progressive. I’m ok. On Steroids today, so doing very well today. Tried all drugs for spasticity but nothing worked. I take steroids every 2 weeks. Just riding it out trying to be positive.
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@seanmay23 i would really suggest that you ask your doctor about how and why he came up with the diagnosis he did.
@seanmay23 about a month ago you said that your symptoms were getting worse even on the Kesimpta. Have to had a chance to talk with your doctor? My current doctor is a neurologist with a speciality in MS. Will your doctor refer you to a specialist like this?
My situation is now as follows (diagnosed 5/23/21). I have an emergency basically. I'm going to be homeless. I need help. I'm divorced. My disability case has reached 9 months, and they are about to decide. If yes I'll be funded in approximately 4-6 weeks according to my attorney's Case Manager. It's leaning toward yes God willing. Either way, I'm I'm a terrible situation. Can anyone advise/help with advise on immediate funding, some direction, assisted living, housing, apartments (im in Clearwater, FL), counseling? I've yet to post anything prior because I've been hanging on quietly to be honest.
I'm a wreck.
Hi Sean, I recommend that you type your Zip code into this search engine https://www.findhelp.org/
Find Help can help you find financial assistance, food pantries, medical care, and other free or reduced-cost help in your local area.
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1 ReactionAm I the only one who has Multiple Sclerosis?
I have not found anyone on “connect” that does.
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1 ReactionWelcome @flowergirl4167. Yes, there are other members here on Mayo Clinic Connect with mutliple sclerosis. I moved your message to this existing discussion so you can connect with @seanmay23 @kco @helenlodahl and others.
You may also be interested in these related discussions:
- Multiple Sclerosis (MS) - please introduce yourself https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/
Flowergirl, how long have you been living with MS? How are you doing?
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3 ReactionsI was diagnosed with MS in 2004. I stated Avonex interferon the day after my diagnosis and continued weekly injections through December 2021. Under guidance of my neurologist, I stopped Avonex (an immune suppressant) so that I can have a Covid-19 vaccine (an immune stimulant). We agreed that I am much more likely to die of Covid-19 than of MS since most people who have MS die WITH it instead of FROM it. Over the years I’ve learned ways to improve my nutrition, exercise, and sleep. My only advice to you is to remember that YOU have MS, but MS doesn’t have YOU. Also, please remember that MS has been around for a century at least, but the Medical Community still doesn’t know what causes it or how to prevent it. You are your own best doctor when it comes to wellness. The book titled Eat, Move, Sleep is very helpful.
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Like -
Helpful -
Hug
4 ReactionsHi! I too have found connect not so connected but Colleen Young saves the day again. You aren't the only one with MS. I have RRMS. I'm happy to connect with you :).
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3 ReactionsIt feels that way, yet I'm here plodding along. How are you? When were you diagnosed? If you don't mind my asking.
Sean
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2 Reactions3 years. Progressive. I’m ok. On Steroids today, so doing very well today. Tried all drugs for spasticity but nothing worked. I take steroids every 2 weeks. Just riding it out trying to be positive.
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