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Recently diagnosed with Multiple sclerosis

Brain & Nervous System | Last Active: Apr 28, 2023 | Replies (47)

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@flowergirl4167

Am I the only one who has Multiple Sclerosis?
I have not found anyone on “connect” that does.

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Replies to "Am I the only one who has Multiple Sclerosis? I have not found anyone on “connect”..."

Welcome @flowergirl4167. Yes, there are other members here on Mayo Clinic Connect with mutliple sclerosis. I moved your message to this existing discussion so you can connect with @seanmay23 @kco @helenlodahl and others.

You may also be interested in these related discussions:
- Multiple Sclerosis (MS) - please introduce yourself https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/

Flowergirl, how long have you been living with MS? How are you doing?

I was diagnosed with MS in 2004. I stated Avonex interferon the day after my diagnosis and continued weekly injections through December 2021. Under guidance of my neurologist, I stopped Avonex (an immune suppressant) so that I can have a Covid-19 vaccine (an immune stimulant). We agreed that I am much more likely to die of Covid-19 than of MS since most people who have MS die WITH it instead of FROM it. Over the years I’ve learned ways to improve my nutrition, exercise, and sleep. My only advice to you is to remember that YOU have MS, but MS doesn’t have YOU. Also, please remember that MS has been around for a century at least, but the Medical Community still doesn’t know what causes it or how to prevent it. You are your own best doctor when it comes to wellness. The book titled Eat, Move, Sleep is very helpful.

Hi! I too have found connect not so connected but Colleen Young saves the day again. You aren't the only one with MS. I have RRMS. I'm happy to connect with you :).

It feels that way, yet I'm here plodding along. How are you? When were you diagnosed? If you don't mind my asking.

Sean

I do! RRMS for almost 25 years now

I have MS too.