1. < Stroke & Cerebrovascular Diseases

Stroke, high factor VIII

Posted by kathiemk @kathiemk, Aug 18, 2021

Has anyone else found out they have high factor VIII after suffering a stroke?

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

kathiemk | @kathiemk | Aug 25, 2021
In reply to @avmcbellar "Hi @kathiemk I understand a high count of Factor VIII can be a warning sign for..." + (show)
@avmcbellar

Hi @kathiemk I understand a high count of Factor VIII can be a warning sign for blood clots. Since your physicians placed you on Warfarin did they not often do PT/INRs to assess and adjust for the Warfarin dosage? Sorry to hear you had bleeds. I hope the bleeds did not cause any deficits. Are you doing OK now? Was the remedy a vitamin K injection?

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They initially just stopped the Warfarin…my PC doctor was testing/adjusting my Warfarin dosage a lot! Test results were all over the place (later I was informed that this is (blood turning to “water”, then back to “mud” quickly) what happens when you have high (2.4x normal level) factor VIII.

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kathiemk | @kathiemk | Sep 28, 2021
In reply to @hopeful33250 "Hello @kathiemk and welcome to Mayo Clinic Connect. As you know, this is a patient-to-patient support..." + (show)
@hopeful33250

Hello @kathiemk and welcome to Mayo Clinic Connect. As you know, this is a patient-to-patient support group.

I have found a few members of Connect who have discussed this as either they or a family member has been told that they have this Factor VIII. I would like to invite them to discuss their experiences with you, @heidi2020, @moo1 @jenhaz @garlamba @crackerjack and @karaf8.

Have you been found to have high factor VIII after suffering a stroke or are you inquiring about a family member? If so, what has your doctor said about it?

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I found out after I had suffered a stroke.

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Sep 29, 2021
In reply to @kathiemk "I found out after I had suffered a stroke." + (show)
@kathiemk

I found out after I had suffered a stroke.

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Hello @kathiemk,

I was thinking about you and wondering how you are feeling. Any more stroke-related pain? Is the Xarelto still working well for you?

Could you post an update when it is convenient?

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abartels | @abartels | Jun 16, 2023

I am a Factor V and just found out I may have had a stroke. MRI on the 30th for a brain scan.

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blessme | @blessme | Nov 10, 2023

Hello, new to Mayo Clinic, have been looking for years for group chats with others who have Factor VIII.

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ruthheat | @ruthheat | Feb 25, 2024
In reply to @kathiemk "I also found out that if you have high factor VIII, warfarin is the worst thing..." + (show)
@kathiemk

I also found out that if you have high factor VIII, warfarin is the worst thing to take…

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why is that?

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michele70 | @michele70 | Mar 2, 2024
In reply to @kathiemk "It was found after suffering a stroke (a current routine test done at rehab hospital I..." + (show)
@kathiemk

It was found after suffering a stroke (a current routine test done at rehab hospital I was at). But, it didn’t trigger them not to recommend Warfarin as a blood thinner to my primary care dr. resulting in brain/body bleeds for me. 3 trips to 2 hospitals in 4 days….

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I don't know if I have Factor VIII but a few family members have VIII. In any case, since my stroke was a bleed I am not supposed to have anything like a blood thinner. I am so sorry you have had so much so many trips to the hospital. So darn frightening that we mighty have another stroke. My doctor said I have a 90 percent chance of NOT having a stroke again. Blessing to you and will put you on my prayer list.

Kind Regards,
Michele

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michele70 | @michele70 | Mar 3, 2024

I was wrong I spoke with my niece and she said the thread that affects many of my family members is Factor V Leiden. So far two sisters, two nieces, two great nieces have the same gene. Only the two sisters in their 70's now have had a stroke. The younger nieces and great nieces being so young have not had a stroke.

Prayers to all you good people here to remember to get outside and walk each day possible and only one alcohol drink a month, if at all. This is my formula for recovery.

Take care everyone.

Kind Regards,

Michele

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