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No one likes to repeat themselves, apparently

Hearing Loss | Last Active: Nov 27, 2023 | Replies (65)

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@lacy2

@julie thank you for answer... well i am a senior with lots of issues live at home with spouse; as i may have said tinnitus gadually over years became almost 24,7; hearing loss they call moderate; seems to be similar test each time ... we have about 4 audiologist offices where i live in Ontario north. I ask for a copy of the test each time. 2 or 3 yrs ago i tried temporary hearing aids, but wasnt well at all and they keps squealing when put in and out and also made loud noises louder, so when i had test again this year he said if they didnt work last time wont work this time.

its odd that just with a few family members talking i cant hear half of what is said.. although they dont really make an effort to face me etc., yet if i put a plastic jug down a bit too heavy on plastic counter it doesnt hurt my ears but sounds loud.. certain tones i suppose. 2 ents here and 2 yr waiting list for one and a yar for other and i waited year and he phoned me and was really upset i had been referred to him for ear pain by on line doctor saying had more urgent patients etc etc. my spouse heard him,

i wrote a nice letter apoogizing if i had said somethingthat upset him and he phoned again aplogizing but basically saying perhaps ear pain from neck or previous tmj etc. honestly julie i could go on and on with the story; i did go to next town and ent rude to staff and dismissed me saying use nasal rinses etc. one thing is that i have had mucous from right nose for over a year but no one wants to kow and its in abundance, clear, no blood, mucous on and off all day yet ent said use rinses in nose for crusts.. havent had a crust in my nose since i was five !

anyway, what is worse than the tinnitus, machinery noise, and pain in ears and sinus muscous is pressure in and around ears and now jaw pain back but dentist doesnt say tmj...

and its because of narrow angle glaucoma, cannot take a lot of meds. i have spoken about it on here. Antidperssants... steroids... travel pills, .. few other types of pills raise eye pressure ... if i take them eye pressure could suddenly raise and no emerency ophthalmologist works nights at our local hosptial, and i did go to Toronto 2018 and was told not to take them, with narrow angles could lose vision..

i have been walking a tightrope trying to cope with it all since 2018 when diagnosed and also got cdiff from too many antibiotics for utis...dealign with it at home and over 100 antibiotics....i have mentioned this on here before then take a break from my story, then like tonight 2.30 am and every night woken by noise.. is it my tinnitus or a neighbours poolheater, or trans canada pipeline or this or that...

at almost 78 i am running out of steam. SORRY to go on and on but i feel i not only fell through the cracks but having no fam dr for 2 yrs and one before nor caring...feel I am on my own.

I lie here thinking of wishing to fall asleep and not wake up.. i read stories from others on here about what they are going through and admire them, i dont know how they do it.

I have ocular migraines, ibs=d, fecal incontinence , which is horrible; P.N. and diagnozed over internet Essential Tremors.and some other odds and ends.. . i envy people who live in larger cities with teaching hospitals etc but with all my assortment of ills and esp. fecal incontinence cannot travel too far... diapers do not hold diarrhea And where could zI change , in a restaurant washroom along the highway?....and wash on a 4 hour drive each way, its impossible.

Not looking for sympathy.... and not telling half the story, but i not only feel i fell through the crack but the crack has been filled in with cement and i cant get out... like being in a maze and i am sure am not the only person this is happening to.

I almost just deleted this as seems like a rant and I am whining yet read about people have such more serious issues, but the fact i cannot take many meds and long wait for specialists, years, and have spent most of past 2 yrs in bedroom, not the way i thought i would pass the last years of my life.

Bless you for answering; bless all those dealing with ill health issue, multiple health issues and the "good" doctors who are actually helping their patients to the best of their abilities instead of almost dismissing them.

Well almost 3 so another you tube tape to listen to, at least can put ipad next to face and hear what he is saying! Thanks again and sorry for rambling!! I will keep doing my best but its a daily challenge for sure! Take care, stay safe, J.

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Replies to "@julie thank you for answer... well i am a senior with lots of issues live at..."

Hi @lacy2, Rambling is allowed. Good for you for continuing to do your best in face of so many medical challenges. I'm glad that you posted in the Aging Well group in this discussion:
- Where to start with multiple conditions? Symptoms don't add up https://connect.mayoclinic.org/discussion/peculiar-symptoms-that-dont-add-up-bowel-and-ear-pain/

Sounds like you have some hearing loss, tinnitus and also hyperacusis. I know, because I have all three too. It is almost impossible to manage. I also have hearing aids, but they don’t do much of anything. If I turn them up enough to help understand conversation, my hyperacusis is just that much worse! It’s as if I don’t hear what I want/need to hear, but I hear everything else crashingly LOUD. It is maddening. Not much is known about any of this. I guess my post is just to say...you are not alone.
I understand much of what you are going through.
Captions on the TV are essential. I use TV to distract myself from tinnitus. I need breaks by myself with quiet too.
Good luck to you. ❤️