@linja oh that is so confusing to get contradictory information. Mast Cell Activation Syndrome (MCAS) can be hard to diagnose because its symptoms overlap with those of many conditions. I'm also tagging fellow members @pamandrewsrn @megansims @nla4625 @yaramarthe @smbryce1 and @thenerdybunch to share their diagnosis experiences and offer tips.

According to this article:
https://www.healthline.com/health/mast-cell-activation-syndrome#diagnosis
To be diagnosed with MCAS, you must meet the following criteria:
1) Your symptoms affect at least two body systems and are recurrent, and there’s no other condition causing them.
2) Blood or urine tests performed during an episode show you have higher levels of markers for mediators than you do when you aren’t having an episode.
3) Medications that block the effects of the mast cell mediators or their release make your symptoms go away.

Before diagnosing your condition, your doctor will review your medical history, give you a physical exam, and order blood and urine tests to rule out any other causes of your symptoms.

They may also have you avoid certain foods or medications for a period of time to narrow down what your triggers might be.

They may also ask you to keep a detailed log of your episodes, including any new foods you ate or medications you took before it started.

Linja, do your symptoms match the above criteria? Do you keep a journal of your episodes and triggers?