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Lewy Body Dementia with Parkinson

Parkinson's Disease | Last Active: Mar 18, 2022 | Replies (48)

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@IndianaScott

Hello @shirlpat I'm Scott and my wife's brain cancer caused her to have all types of hallucinations -- olfactory, visual, and auditory, I know each patient, their disease, and journey are unique, but here is what I did for my wife. I had to learn how to accept that this was her disease speaking and not her -- so to her what she was experiencing was her truth/reality so I never contradicted or challenged her. I just went with her flow, let her tell me what she was smelling, hearing, or seeing, and then we'd talk about it with me agreeing with her. I found agreeing with some suspension of my own reality, helped her the most.

The hardest was when she would insist that I was not in bed with her at night, but instead standing beside the bed talking to her. Only once did I have to disagree and work her through one of these, which was when she believed our house was on fire and our nonexistent dogs were in danger.

It's a complicated issue for sure and I'm happy to talk about our experiences more if you have other questions.

Strength, Courage, & Peace

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Replies to "Hello @shirlpat I'm Scott and my wife's brain cancer caused her to have all types of..."

Thanks for your input. I agree that the best thing is simply listen and let her tell me ever;ything that she is seeing or hearing.