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Livedoid vasculopathy group: Checking in, how are you doing?
Skin Health | Last Active: Apr 13 5:40am | Replies (27)Comment receiving replies
You’re most welcome. I wish there were definitive answers for you because I know that feeling of uncertainty too. So many unknowns with this virus but one fact is that the vaccine works in preventing and slowing down the advancement of the virus and milder breakthrough cases for people who have been vaccinated.
I found some previous discussions on LV that you might find interesting.
Livedoid vasculopathy https://connect.mayoclinic.org/discussion/livedoid-vasculopathy/
– Treatment options for Lividoid Vasculopathy (LV)
https://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/
– Livedoid vasculopathy and thrombocytosis: related? https://connect.mayoclinic.org/discussion/livedoid-vasculopathy-1/
Will you let us know what you decide to do? We all learn by sharing on Connect.
I’d like invite a few members who have LV into this discussion.
Hi, @yoan02 @zenk @ruthnz @curtismiller, have any of you received the Covid -19 vaccination? If so, did you find any worsening symptoms with your LV? @ykh128 would be interested to hear about any reactions you might have had to the vaccine.
Replies to "You’re most welcome. I wish there were definitive answers for you because I know that feeling..."
Hi, in NZ we only have the pfizer vac and I have never considered having it. For me the answer is a no. I've had one AI skin disease, Lichens Sclerosis, for 20 years. Since I developed LV in 2019/2020 I've also had Leukocytoclastic Vasculitis LCV which is similar - you get a huge large rash on your legs (to the top) and some of them turn into ulcers and are just as bad as LV. I also had two occasions of Scleritis (eye weird thing). Since April 3, from a spot on my leg, I have a huge raw mess there that I'm still trying to get under control. Right now (3rd month) I'm seriously not eating anything on anyone's allergy list. Since 2019 I've eliminated all chemicals from my life, and now am also taking supplements to try and reverse my immune system out of this despairing condition and make it function properly. So, the V is a no while I do this. Luckily here in NZ we have very few cases, they are all in managed isolation and the chance of my catching C19 is extremely low. I am also weary of being near people who have recently V'd, Reports on women's groups I'm on, report than even without the V if you have contact with those that have had the V there can be disruptions to menstrual cycles, old women and children spotting/menstruating. So I'm staying away from those people too. Luckily I'm retired and don't have to go to work. Having the V doesn't stop you from getting C19 or carrying it. it may lessen the severity. We all have the freedom to make an informed choice.. Everyone is different and has got to this place LS, LV, LCV and whatever other AI's you might have on a different journey. There is no one size fits all. Only the future will tell how safe it is.
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Hi
I received the vaccine ( Moderna ) back in May and yes I have been dealing with a couple of bad ulcer on my left leg for the past 5 weeks. I really don't know if the vaccine has anything to do with it but it has been 8 years since I had bad ulcers to the point where I've been going to the wound care clinic for treatment.
The wounds are finally healing, very slow but they are healing.
I'm still planning on going to the Mayo Clinic in Jacksonville but I really don't know who should I reach out to. I though I had to find a Hematologist but in recent research I found out that a Dermatologist should be the specialist when seeking for treatment
any advice would be appreciated.
thank you