Metastatic breast cancer: Anyone else?

I didn’t mean you weren’t advocating for yourself. It just seems some oncologists will not do minimal testing and I don’t know why. I expressed localized pain to my oncologist quite often and she wouldn’t even order blood work. She suggested taking gabapentin, increasing magnesium and suggested taking Claritin but was so shocked she wouldn’t order a PET scan. I discovered a lump in my clavicle in November and turns out breast cancer has returned and it has metastasized. CT showed swollen lymph nodes on both sides.
I’ll be starting chemo the end of January.

i am sorry you are in the midst of this new situation. What we all wait for, subconsciously or consciously. Without the lump in the clavicle I wonder when it would have been found. My oncologist discharged me at years out, even though risk continues to go up for hormonal cancers. I found another one. COVID has been a factor in not following up in person. Good luck with the chemo!

Hi @mssewest, I just thought I'd pop in as I was thinking about you. You'll be starting chemo soon, right? What regimen are you starting and how often will you be having treatment?

How are you doing today?

Thank you Colleen for thinking about me. I will be starting chemo Friday 2/4 which will consist of Tratusumab, Herceptin & Perjeta every 3 weeks. I am not sure how many cycles.
A tumor was found in my chest wall & liver with Mets to lungs, spine, lymph nodes and mammary glands. I am in quite a bit of pain in the right thigh, right femur and right shoulder area. A lot of pain in the neck and clavicle area where the a lump is palpable.

How are you doing? Any residual effects from the Covid?
Are you still able to have treatments?

Good morning, you all give me strength and hope.
Thanks for sharing your story and when life takes you on a detour..
It is ok to be upset and it is ok, to have to re- plan your journey and not be happy about it!
Breathe know you gave me more strength to complete my journey and watch everyday for something different.
Thank you thank you.
Chemo round 5 out of 6 tomorrow, doing well.
You are all in my thoughts

Woo hoo! 5 of 6, I am so happy to hear you are getting through it. That you are doing so well and helping others on their journey is a healing salve to my heart.

I just wanted to post here to include myself in the MBC group. Are there other groups discussing issues specific to MBC?

I was diagnosed in January, de novo. ER+ and HER2- and mets to bones. With the new categorization, I believe I'm in the HER2 low group. Currently on Verzenio and Anastrozole. I was premenopausal so I get monthly shots of zoladex (to shut down ovaries) and Zometa injections for bones.

For those of you who have been having this for a while, have you noticed a shrinking in your original breast tumor? Mine felt like it was shrinking but recently I feel like it's feel-able again. My next scans are in October. The previous scans were "stable".

@eku, oh that must be encouraging and unsettling to feel like the cancer was shrinking then "feel-able". October is just around the corner.

To find other discussions with women living with metastatic breast cancer, you can put search terms "MBC" or "metastatic breast cancer" into the Search Discussions on this page: https://connect.mayoclinic.org/discussions/all/

I think you may also appreciate this discussion group:\
- Anyone else living with breast cancer and bone metastasis? https://connect.mayoclinic.org/discussion/how-long-can-one-live-with-bone-cancer/

I had a mastectomy one and 1/2years ago and have had a pet scan showing that I have neuromas nodules in my lungs.
I had a biopsy on August 30, and it took that long that my cancer has returned.
It is stage 4 Metastatic breast cancer.
I had an appointment 12 days; now, they tell me today the drug the doctor wanted me on is not
approved. So they went to another medication to see if that would be authorized.
Here I am still waiting for a chemo drug to get approved,
So stressed beyond belief