Smelling Cigarette Smoke (Phantosmia): What could it mean?

Posted by iceblue @iceblue, Dec 28, 2019

At some point in the past week or two I started smelling cigarette smoke where there definitely was none. Initially it was just a brief whiff while sitting in my easy chair and then it would be gone, but now I smell it everywhere. And it's no longer just a brief whiff - it's almost constant and to the point where it sometimes makes me feel nauseous.

I have recently increased the amount of Gabapentin I'm taking from 300 mg/day to 500 mg/day. Is it possible the increase in Gabapentin has anything to do with this?

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@johnbishop

Hello @scottula, Welcome to Connect. While we wait for other members to respond and share their experiences I did find some information supporting that stress and anxiety can play a part in parosmia.

-- Feeling stressed makes the world smell worse: https://www.independent.co.uk/news/science/feeling-stressed-makes-the-world-smell-worse-8844178.html
-- A shot of anxiety and the world stinks: How stress can rewire brain, making benign smells malodorous: https://www.sciencedaily.com/releases/2013/09/130924174150.htm

Here's an article that may offer some ideas for treatments that help -- Parosmia: https://www.healthline.com/health/parosmia

Have you discussed the new symptoms with your doctor?

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Thank you for the links, John!
I have now called to schedule another doctor appointment. Feel like a hypochondriac at this point, but will try it again

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@colleenyoung

@scottula, that sounds miserable. Here's an explanation Mayo Clinic of olfactory hallucination (phantosmia) that makes you detect smells that aren't really present in your environment.

- Phantosmia: What causes olfactory hallucinations? https://www.mayoclinic.org/diseases-conditions/temporal-lobe-seizure/expert-answers/phantosmia/faq-20058131

Phantosmia may be caused by upper respiratory infection and you mention that you have issues like congestion, tightness in chest, difficulty getting deep breaths, and exhaustion.

Stress certainly effects our health too, sometimes in surprising ways. You might try this online course. It was written for cancer patients, but I think it is useful for anyone experiencing stress.
– Mayo Clinic Stress Management for Cancer https://mccmscontent.mayo.edu/LSC/stress-management-for-cancer/content/index.html#/

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Thanks Colleen! Going through the course now : )

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Dear All
I've just found this as a couple of years ago I only occasionally smelled cigarette smoke at my Mother's house and believed that it was either the neighbours or someone passing by on the street.
Fast forward to 1 month ago and, after a severe cold in December I started smelling smoke at my house a little more frequently. Again, I thought it was one of my neighbours (I live in an apartment block).
I had a cold last week now constantly smell cigarette smoke both at home, in the office, in my Greek lesson class, practically everywhere and it seems as though the smoker is sitting right next to me. I've been asking everyone around me if they can smell it and the answer is no.
It's driving me crazy and beginning to get me down.
I quit smoking back in 1986. I am 63 and do not (luckily) take any medication other than the odd Ibuprofene or Paracetamol tablet for headaches (max. 3 times a year).
I called my doctor this morning (the first time I've had to call in two years) and she just prescribed me some Flumicil as I am suffering from coughing fits at night from what feels to me like post nasal drip and she has asked me to take a Covid test, just in case. I do hope that this will help, but it really is beginning to get me down now.
At least I know I'm not alone with this problem, but I so want it to end.

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@ppditaly

Dear All
I've just found this as a couple of years ago I only occasionally smelled cigarette smoke at my Mother's house and believed that it was either the neighbours or someone passing by on the street.
Fast forward to 1 month ago and, after a severe cold in December I started smelling smoke at my house a little more frequently. Again, I thought it was one of my neighbours (I live in an apartment block).
I had a cold last week now constantly smell cigarette smoke both at home, in the office, in my Greek lesson class, practically everywhere and it seems as though the smoker is sitting right next to me. I've been asking everyone around me if they can smell it and the answer is no.
It's driving me crazy and beginning to get me down.
I quit smoking back in 1986. I am 63 and do not (luckily) take any medication other than the odd Ibuprofene or Paracetamol tablet for headaches (max. 3 times a year).
I called my doctor this morning (the first time I've had to call in two years) and she just prescribed me some Flumicil as I am suffering from coughing fits at night from what feels to me like post nasal drip and she has asked me to take a Covid test, just in case. I do hope that this will help, but it really is beginning to get me down now.
At least I know I'm not alone with this problem, but I so want it to end.

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Welcome @ppditaly, It is somewhat comforting to know you are not alone. I'm wondering if you saw the links @colleenyoung shared with @scottula in an earlier post. Here is the link - https://connect.mayoclinic.org/comment/635780/

Did your doctor mention anything about phantosmia (olfactory hallucinations) or discuss possible treatments?

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@johnbishop

Welcome @ppditaly, It is somewhat comforting to know you are not alone. I'm wondering if you saw the links @colleenyoung shared with @scottula in an earlier post. Here is the link - https://connect.mayoclinic.org/comment/635780/

Did your doctor mention anything about phantosmia (olfactory hallucinations) or discuss possible treatments?

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No, she didn't mention anything about that but said she wanted to start with the Flumicil to try to clear any mucus which seems to be secreting and disturbing me at night.
She also wants me to test for Covid, just in case.
I've read just about all the posts in this string but as I don't take any medication I now think that an infection or fungus of some sort could be the cause.
I've got humidifiers with essential oils going in the bedroom and in the sitting room in an attempt to cover any odours. I've also got the windows open a fraction now that the outside temperature is better, but I've always aired out the apartment.
I'll take a look at the link and see how I get on with the Flumicil.
Watch this space....

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@ppditaly

Dear All
I've just found this as a couple of years ago I only occasionally smelled cigarette smoke at my Mother's house and believed that it was either the neighbours or someone passing by on the street.
Fast forward to 1 month ago and, after a severe cold in December I started smelling smoke at my house a little more frequently. Again, I thought it was one of my neighbours (I live in an apartment block).
I had a cold last week now constantly smell cigarette smoke both at home, in the office, in my Greek lesson class, practically everywhere and it seems as though the smoker is sitting right next to me. I've been asking everyone around me if they can smell it and the answer is no.
It's driving me crazy and beginning to get me down.
I quit smoking back in 1986. I am 63 and do not (luckily) take any medication other than the odd Ibuprofene or Paracetamol tablet for headaches (max. 3 times a year).
I called my doctor this morning (the first time I've had to call in two years) and she just prescribed me some Flumicil as I am suffering from coughing fits at night from what feels to me like post nasal drip and she has asked me to take a Covid test, just in case. I do hope that this will help, but it really is beginning to get me down now.
At least I know I'm not alone with this problem, but I so want it to end.

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@ppditaly Good morning and welcome. I see you joined Connect today, on my birthday!😊 Unfortunately, I have no consolation prize to offer.

What I do have is an experience from my working days when my co-worker complained of smelling smoke for a couple of years. She and I sat adjacent to each other and were, and are, still good friends. While I suffered from hypersensitive sensors and could smell anything and everything, I never smelled her claim of smoke. She also was having headaches and occasional migraines which lead her to a neurologist. Inevitably, an MRI found a brain aneurism and she had surgery to remove it. All went well and my friend is now healthy, happy, and no longer smelling smoke. I don't share this to alarm you, and am not saying you have this scenario, but knowledge is power. Do you have a neurologist? If so, have you mentioned smelling smoke to them?

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Took my first dose of Flumicil before I went to bed last night, together with a nasal spray and a throat spray. No coughing attack or Post Nasal Drip in the early hours and actually slept through to 8.00 am !!!!
No sneezing today and so far just a little 2 minutes of cigarette smoke this morning.
Methinks seriously that it was all due to mucus, sinus and upper airway blockage.
If I have any negative news I report back, otherwise this is one, very happy person.

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@jakedduck1

@iceblue
All the decades I’ve been on Epilepsy forums I’ve never heard of gabapentin causing the nonexistent odor side effect. I did read this sometimes this can spontaneously goes away after 5 years. However I find the 5 year period questionable. I used to take gabapentin and was on the maximum dose of 3,600 mg and never experienced any side effects at all. I discontinued it because it didn’t help my neuropathy or my seizures. Of course side effects are different for everyone as we all know. Where did you read that gabapentin caused this side effect? I’d like to read it.
As far as Epilepsy is concerned I wouldn’t write it off based solely because your on Gabapentin. I took 5 Anticonvulsants (30 pills a day) and still had daily seizures. From what I know and from what I’ve heard from thousands of people who have epilepsy and specifically temporal lobe epilepsy I have never heard of a strange odor as an Aura or as a Focal Aware Seizure lasting more than a few minutes at most. If you had an EEG I would be very curious of the results. Have you noticed any Myoclonic movements? Is this smell absolutely constant every second your awake? Do you have a dog? If so is s/he acting unusual in any way? Seizure dogs are able to smell seizure odor molecules in the parts per trillion. Have you done anything out of the ordinary since this started? Anything at all even if you believe it to insignificant.
Jake

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You make some very good and valid points there. I Daughter takes Gabapentin 300 mg. and I had never heard of that side effects either. I will let her know about it now and she is changing Dr"s as hers moved away without notice.

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Twelve years ago I was coming back home with my family after leaving a restaurant. Mid way through the ride I smelled smoke cigarette smoke and it was heavy. I asked if any of them smell that, no to my kids and husband. When we got home I was puzzled because the smell hadn’t gone away. I sat watching tv for 3 hours until it was gone I recall it hurting my throat a lot.

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@sundance5

Twelve years ago I was coming back home with my family after leaving a restaurant. Mid way through the ride I smelled smoke cigarette smoke and it was heavy. I asked if any of them smell that, no to my kids and husband. When we got home I was puzzled because the smell hadn’t gone away. I sat watching tv for 3 hours until it was gone I recall it hurting my throat a lot.

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Some might say it’s a visit from a deceased loved one.

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