Metastatic breast cancer: Anyone else?

Hi @jacsmom, welcome to Connect. You'll notice that I moved your message to this existing discussion about metastatic breast cancer. I did this so you can connect with others members living with MBA, like @rae3 @wandering @saltis @18dee @nancy2952 @nikki727 @lynnydave12 @karenatmayo and others. If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Jacsmom, I can imagine that you're feeling uncertain and scared to have the confirmation of metastasis. You'll see that you're not alone. There are others here to support you as you prepare for your bone biopsy coming up and the path ahead. Feel free to ask questions and share your feelings. We're listening.

HI I am new to the group. Diagnosed with MBC just shy of 5 years after Stage 2 Breast cancer. Was on Ibrance, loved it, but stopped working after a year, went on xeloda and stopped working after 13 months. Now waiting to have Biopsy on liver, and determine next step. ANy advice or reccomendations would be great

Hi pbc, welcome to the breast cancer group. I think you might also be interested in this related discussion.
- Ibrance and Liver Lesions https://connect.mayoclinic.org/discussion/ibrance-and-liver-lesions/

I'm also tagging @trivia @mertdog2000 @dianamiracle who share a similar experience. You mentioned you have a liver biopsy coming up. Have new lesions been discovered on your liver?

I have never had any lesions in my liver. I just had a pet scan and they saw a spot on my liver.

I was diagnosed dec 2018 with Mbc. It is in my colon as well as some bones. My Ibrance stopped working now we are deciding on treatments to keep it from spreading. I hate this Im tired of always wondering what’s next. I have given it all to God and it has calmed me tremendously. Tell me more about your injections my dr has talked about these.

MBC has its own set of treats it brings to the day. I try to keep a sense of humor about this. I am glad your anxiety is lessened. I find the act of letting go and letting God is something that I have to practice daily. MBC treatments have come a long way in a short time. There are quite a few now. Can you tell me which injections you are asking about?

I had breast cancer in 2014, grade 3 with lymphovascular invasion. I had a double mastectomy, no chemo or radiation, hormone treatment only. With arthritis, osteoporosis and fractures, I have a lot of bone pain. How do we ever know to ask for a bone scan for MBC? I am sorry you are dealing with this!

For me it is simple, I go to my doctor and say I am having a lot of bone pain may I please have a bone scan. I am worried about the cancer coming back. My doctor is so good he will either just order it, or talk to me about what else he might do to check on that. The osteoporosis can cause bone pain as well, but if that is worsening then that is a signal from your body. How soon before you have a doctors appointment? What kind of doctor is monitoring you for cancer?

I finished 5 years of Femara and was basically told no need to schedule visits. COVID was a factor in me finding another doc. I am having so many other problems, I need to check in with an oncologist who provided a second opinion and I liked better.

Good for you, if you have a primary care doctor that you like, he could order that too. I would still ask to follow up at least annually with an oncologist. Please do ask for an answer to this bone pain, if it comes back negative, then celebrate. More information is never bad in my mind. Are you comfortable asking your primary care for it?