Please Share your MAC and Bronch Success Stories - However Small

Posted by Sue, Volunteer Mentor @sueinmn, Aug 22, 2021

Please tell us about anything you have done to keep the dreaded infections at bay, or improving your health/breathing/energy.

@thumperguy and @kathyhg - you have both told us good news lately, care to share?
Sue

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

thumperguy | @thumperguy | Aug 25, 2021

In reply to @thumperguy "Question: Do an Aerobika and a percussion vest accomplish more or less the same thing?" + (show)

Make that percussion vest along with nebulizer.

rits | @rits | Aug 25, 2021

In reply to @thumperguy "Make that percussion vest along with nebulizer." + (show)

The aerobika works from the inside causing a vibration from the flutter during the long exhale. The vest works from the outside pounding the gook loose.

rits | @rits | Aug 25, 2021

In reply to @thumperguy "Make that percussion vest along with nebulizer." + (show)

Ah changed the question. Tricky of you Thumper. The saline soaks the sputum making it easier to get it out. Sort of like soaking a garment to loosen a stain before scrubbing it out. Or dishes.

hauoli | @halford | Aug 25, 2021

In reply to @sueinmn "Tajin - Mexican Chili/lime/salt seasoning - just a little peps up any food! High quality flavored..." + (show)

Thanks for the seasoning recommends. I wanted to follow up that I did see my pulmonologist yesterday and I did ask him if I could be put on a 7% saline solution instead of 3% and he said ok. That it would be salty.
We got back three of my sputum samples and I do have MAC but he thought I am seeming to be able to control not getting worse. Tomorrow I will do another sputum sample and the following week see the ID doctor.
My pharmacy doesn't have the 7% so they are ordering it in. I want to try this 7% with all the positive reports on it. We ended my visit by the Dr saying that mucus will always be flowing into the lungs and nebulizing is a way of controlling the amount of bacteria that builds up. A constant awareness of what our body does.

Sue, Volunteer Mentor | @sueinmn | Aug 25, 2021

That's an encouraging report. It's a long term proposition as far as I can tell. At first the 7% is pretty bad, but it quickly feels routine.

Sue, Volunteer Mentor | @sueinmn | Sep 13, 2021

Woo hoo! I'm happy today. I had my lung CT on Friday. 20 months off antibiotics and using 7% news. Report: No Progression of bronchiectasis. No evidence of infection. No cavities. Just the same opacity and calcification at December 2019.
Celebrating with a margarita!
Let's hear it for 7% news and airway clearance.
Sue