1. < Neuropathy

Burning feet and legs

Posted by jimmy 370 @jimmy370, Dec 9, 2020

Anyone have burning feet and legs, and back here in Albany NY been to 8-10 specialists! And no one can give me a answer what is causing it! Thanks jim

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1luckyguy | @1luckyguy | Sep 8, 2021
In reply to @greenacres "Thank you for responding @1luckyguy! Does this help with the neuropathic burning pain or itching?" + (show)
@greenacres

Thank you for responding @1luckyguy! Does this help with the neuropathic burning pain or itching?

Jump to this post

It does offer relief. As I previously stated, I use it throughout the day...

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dianecostella | @dianecostella | Sep 9, 2021

I have that and tested positive for small fiber neuropathy. The only way to diagnosis it through a skin biopsy. My neurologist orders a compound for me at a compound pharmacy. I rub it on my legs at night it helps but I am also on Gaberpentin.

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1 reply
drolker | @drolker | Sep 13, 2021

I have burning feet. The diagnosis is Erythromelagia. There is no known cause or cure. It’s associated with neuropathy. I live in MD. Our climate has temperature changes that impact the severity of my burning feet. This is what helps me. My dr prescribed Rhofade cream . It’s used for rosacea, redness on the face. It helps for about 3 - 4 hours . Then you have to reapply. Direct sun and hot temperatures are my enemy now. I also take a mild diuretic for the feet swelling . The swelling had gotten so bad , I also sleep with the ceiling fan on, a tower fan at the foot of the bed and AC on 72 degrees. Hope you get some relief soon.

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drolker | @drolker | Sep 13, 2021
In reply to @dianecostella "I have that and tested positive for small fiber neuropathy. The only way to diagnosis it..." + (show)
@dianecostella

I have that and tested positive for small fiber neuropathy. The only way to diagnosis it through a skin biopsy. My neurologist orders a compound for me at a compound pharmacy. I rub it on my legs at night it helps but I am also on Gaberpentin.

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What is in the compound?

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cue | @cue | Sep 20, 2021
In reply to @artscaping "Good morning @cue. What a simple and effective tip for those of us who need a..." + (show)
@artscaping

Good morning @cue. What a simple and effective tip for those of us who need a little help to enjoy our nighttime dreams and get much-needed sleep.. If you have a Lidocaine-based compound you could probably make your own patch. Thanks for the tip.

What other medications or treatments do you find effective?

May you be content and happy.
Chris

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I also have a lidocaine-based compound but find the patch works better. When I pull it off in the morning my feet are cool.

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Mentor
John, Volunteer Mentor | @johnbishop | Oct 9, 2021

Hi @piross1528, Thank you for the private message. I thought I would respond to your message in this discussion - Burning feet and legs so that you can meet other members discussion neuropathy symptoms similar to what you are feeling and learn what they have shared.

You asked if my numbness began with burning feet or if numbness was the original sensation. You mentioned your feet burn and feel hot often and are wondering if the burning will eventually turn to numbness. My neuropathy started out as just numbness in the toes over 25 years ago and gradually got up to just below my knees where it also felt a little numb but not completely. I shared my complete story and what helps me in the Member Neuropathy Journey Stories - What's Yours? discussion here: https://connect.mayoclinic.org/comment/310341/

Have you tried any alternative or complementary therapies to see if they help? The Foundation for Peripheral Neuropathy has some suggestions here - https://www.foundationforpn.org/living-well/

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kat600 | @kat600 | Oct 14, 2021
In reply to @barbbie "Neurologists in the area of Albany basically suck. I went to NYC to have biopsies done..." + (show)
@barbbie

Neurologists in the area of Albany basically suck. I went to NYC to have biopsies done to confirm small fiber neuropathy. I also have burning and pain from Complex Regional Pain Syndrome in both feet and moving up my legs. I see a marvelous pain management doctor. I had a spinal cord stimulator implanted one in 2012 and a more up-to-date one in 2018 by a neurosurgeon. I have been seeing this pain management doctor for 9 years. I use lidoderm pain patches, lidocaine-prilocaine cream, as well as having a variety of procedures done that some have given me up to two years of pain relief.

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I'm in the Albany area. Where did you go for the spine simulator?

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1 reply
sandysurf | @sandysurf | Oct 16, 2021

I get the “fire ant” feeling from my knees into my feet. Usually at night, but sometimes, like today, I wake up with it.

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1 reply
kskill39 | @kskill39 | Oct 17, 2021
In reply to @sandysurf "I get the “fire ant” feeling from my knees into my feet. Usually at night, but..." + (show)
@sandysurf

I get the “fire ant” feeling from my knees into my feet. Usually at night, but sometimes, like today, I wake up with it.

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I just get the fire ants when they attack but it can be at any time, day or night. It makes me jump and is so embaressing.

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