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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
i have been on the triple ABT therapy for 14 months now for MAC/bronchiectasis. In the last a couple of months I developed a rash and the itchiness is driving me crazy. I went to 2 dermatologists, an allergist/immunologist and to my pulmonologist. I had 2 biopsies, and did a lot of blood work but they could not find a cause of the rash. I tried Anti Itch Cream, a cream with steroids in it, prednisone, etc and it still persists. The dermatologist thought it might be medication-related as did the allergist. My allergist took the lead and told me to eliminate one of the antibiotics (Rifamkin) as 66% of people have the side effect of a rash. Then if the rash does NOT go away, he will eliminate the Ethambutol to see if that is the cause. I am hesitant to do so. I had him call my pulmonologist to discuss but he is on vacation. The allergist said to me that I have been on the treatment for 14 months. Who really knows if 14 months is not as effective as 18 months. They have not done more recent research to know that. So.. I am a little conflicted. I did not take the Rifamkin last night, as I can't continue on like this either. I live in New York and believe I have an excellent medical team on Long Island. Any suggestions?
Replies to "i have been on the triple ABT therapy for 14 months now for MAC/bronchiectasis. In the..."
Thanks for your answer Terry!
Thanks link123 for your answer!
Thanks tdrell! Same thing for me and have problem breathing if there is a smoker . I need to wear a mask or put something on my nose. My infectiologist (do not know rhe right term in english) said it was due to the bronchiectasis . Does any of your doctors
says the same thing. After exposure, i will cough and i will have few small sputum the next day. I use clear lungs and it works but I hate to have smokers around me. It make me sick!
I am new to this discussion. I have bronchiectasis and use Advair 250/50 2 times each day as well as azithromycin Monday, Wednesday and Friday. I also use nasal spray each day and take a zyrtec. I have had several bouts of pneumonia with hospital stays. I have not heard of Clear Lungs. I am a patient at Mayo in Jacksonville, FL. My doctor has not discussed this with me.
This is not a doctors recommendation rconn602. Clear lungs are natural herbs and it works for me. You can find this in Dr Balch Book Natural Healing . This is where I found the info. As I am not a medication believer because of the secondary effects I try
to find something Natural for all illness. The doctors help me find what is wrong and I go from there. It works for me but it may not work for you. I am a believer in Natural Medicine so that makes also a difference. I have Bronchiectasis because I have
dysphagia (clear liquid only). I had a MAC until this fall now it is gone according to my bronchoscopy lab analysis.
Thank you..I will do some research.
For those of you talking about being sensitive to scents, you may be interested in this discussion in the Lung Health group.
Heavy perfume in medical facilities, or anywhere, really https://connect.mayoclinic.org/discussion/heavy-perfume-in-medical-facilities-or-anywhere-really/
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Thanks for answering jkiemen