1. < Chronic Pain

Pain in the butt - Can't sit down

Posted by ecalderman @ecalderman, Nov 21, 2012

I have had very intense pain at my sitz bones for over 7 months and am unable to sit down. when I sit, it feels like I am sitting on two hot pokers or rocks and it is really unbearable. So, I have been standing for seven months. I've been to a couple of spine and pain management doctors, an orthopedist, a chiropractor, a neurologist, an acupuncturist, and a massage therapist. The original diagnosis was ischial bursitis but that ha not appeared on any images. I don't have any issues with any of my lumbar disks. I'm in constant pain even when standing or lying down though those activities do not hurt as much as sitting. Has anyone heard of anything like this before?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

dcdusek | @dcdusek | Sep 5, 2021
In reply to @mistyb "This month will be two years that I’ve had this problem. I’ve been to five surgeons..." + (show)
@mistyb

This month will be two years that I’ve had this problem. I’ve been to five surgeons and one wanted to do surgery on my spine and the other four said they saw nothing that the first one dead and they don’t know what’s wrong and they came up with the same thing Ischeal bursitis

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Have you had any injuries to that area? You might want to consider a peripheral nerve specialist. They are very often also plastic surgeons. Also, have you had an MRI neurography? That will show nerve injury.

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Sep 6, 2021
In reply to @mistyb "This month will be two years that I’ve had this problem. I’ve been to five surgeons..." + (show)
@mistyb

This month will be two years that I’ve had this problem. I’ve been to five surgeons and one wanted to do surgery on my spine and the other four said they saw nothing that the first one dead and they don’t know what’s wrong and they came up with the same thing Ischeal bursitis

Jump to this post

Hello @mistyb and welcome to Mayo Clinic Connect. I'm sorry to hear that you have had two years of pain without any helpful answers. It sounds like you have seen a number of orthopedic doctors. Has physical therapy ever been suggested? If not, you might consider this. If you have not seen a neurologist, this might also be an important specialist to consult with.

There are also doctors who specialize in chronic pain. Mayo Clinic has a chronic pain clinic and there might be one near you as well. Chronic pain clinics are usually found at larger medical centers, but not at your typical community hospitals. You might search for one in your area if Mayo Clinic is not convenient for you.

Finally, here is a link to an article about Ischial Bursitis that was mentioned in another post, https://www.ncbi.nlm.nih.gov/books/NBK482285/ please feel free to read this information and see if it applies to your pain situation.

I'd like to invite @rwinney, to this conversation as well. She has visited the chronic pain clinic at Mayo and she might have some suggestions for you.

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2 replies
Mentor
Rachel, Volunteer Mentor | @rwinney | Sep 6, 2021
In reply to @hopeful33250 "Hello @mistyb and welcome to Mayo Clinic Connect. I'm sorry to hear that you have had..." + (show)
@hopeful33250

Hello @mistyb and welcome to Mayo Clinic Connect. I'm sorry to hear that you have had two years of pain without any helpful answers. It sounds like you have seen a number of orthopedic doctors. Has physical therapy ever been suggested? If not, you might consider this. If you have not seen a neurologist, this might also be an important specialist to consult with.

There are also doctors who specialize in chronic pain. Mayo Clinic has a chronic pain clinic and there might be one near you as well. Chronic pain clinics are usually found at larger medical centers, but not at your typical community hospitals. You might search for one in your area if Mayo Clinic is not convenient for you.

Finally, here is a link to an article about Ischial Bursitis that was mentioned in another post, https://www.ncbi.nlm.nih.gov/books/NBK482285/ please feel free to read this information and see if it applies to your pain situation.

I'd like to invite @rwinney, to this conversation as well. She has visited the chronic pain clinic at Mayo and she might have some suggestions for you.

Jump to this post

Hello and welcome to the Connect community @mistyb. Thank you for joining the conversation and providing your 2 year experience of uncomfortable symptoms. I understand how frustrated you must be.

@hopeful33250 provided valuable information. I'd also like to know what other specialists you've seen and what's been ruled out. Sometimes the process of elimination, leaves us with things we may not necessarily be able to fix, but allows us to understand what we must learn to manage.

I have a chronic pain syndrome called Central Sensitization Syndrome (CSS). I attended Mayo's 3 week Pain Rehabilitation Center to learn how to manage my symptoms. Also, I weaned off pain medications that were not doing me any favors. I did however remain on a nerve medication, pregabalin (Lyrica).

May I ask how you currently manage your pain?

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mikaylar | @mikaylar | Sep 7, 2021
In reply to @dcdusek "Have you had any injuries to that area? You might want to consider a peripheral nerve..." + (show)
@dcdusek

Have you had any injuries to that area? You might want to consider a peripheral nerve specialist. They are very often also plastic surgeons. Also, have you had an MRI neurography? That will show nerve injury.

Jump to this post

I had this monster for 14-1/2 years and sat on a donut. What took it away was anti-seizure medicine for an unrelated issue. Ask your doctor; it works quickly too. Good luck. Also, I was told MRIs do not show nerve damage.

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davej | @davej | Sep 7, 2021
In reply to @hopeful33250 "Hello @mistyb and welcome to Mayo Clinic Connect. I'm sorry to hear that you have had..." + (show)
@hopeful33250

Hello @mistyb and welcome to Mayo Clinic Connect. I'm sorry to hear that you have had two years of pain without any helpful answers. It sounds like you have seen a number of orthopedic doctors. Has physical therapy ever been suggested? If not, you might consider this. If you have not seen a neurologist, this might also be an important specialist to consult with.

There are also doctors who specialize in chronic pain. Mayo Clinic has a chronic pain clinic and there might be one near you as well. Chronic pain clinics are usually found at larger medical centers, but not at your typical community hospitals. You might search for one in your area if Mayo Clinic is not convenient for you.

Finally, here is a link to an article about Ischial Bursitis that was mentioned in another post, https://www.ncbi.nlm.nih.gov/books/NBK482285/ please feel free to read this information and see if it applies to your pain situation.

I'd like to invite @rwinney, to this conversation as well. She has visited the chronic pain clinic at Mayo and she might have some suggestions for you.

Jump to this post

Hi I'd like to suggest another suggestion. 5 years ago my girlfreind broke her tailbone 1 year after accident she was still having pain when she sits down all of her doctors said with tailbone you will always have pain sitting down. She then went to a chiropractor for another issue shoulder pain and chiropractor told her the tailbone breakage had built up scare tissue which was the cause of pain the chiropractor gave her some excercises to strech the tissues and after a few months pain was gone good luck

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2 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Sep 7, 2021
In reply to @davej "Hi I'd like to suggest another suggestion. 5 years ago my girlfreind broke her tailbone 1..." + (show)
@davej

Hi I'd like to suggest another suggestion. 5 years ago my girlfreind broke her tailbone 1 year after accident she was still having pain when she sits down all of her doctors said with tailbone you will always have pain sitting down. She then went to a chiropractor for another issue shoulder pain and chiropractor told her the tailbone breakage had built up scare tissue which was the cause of pain the chiropractor gave her some excercises to strech the tissues and after a few months pain was gone good luck

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Thanks for sharing that information, @davej. I hope that @mistyb finds that information helpful to her.

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Mentor
Chris Trout, Volunteer Mentor | @artscaping | Sep 7, 2021
In reply to @davej "Hi I'd like to suggest another suggestion. 5 years ago my girlfreind broke her tailbone 1..." + (show)
@davej

Hi I'd like to suggest another suggestion. 5 years ago my girlfreind broke her tailbone 1 year after accident she was still having pain when she sits down all of her doctors said with tailbone you will always have pain sitting down. She then went to a chiropractor for another issue shoulder pain and chiropractor told her the tailbone breakage had built up scare tissue which was the cause of pain the chiropractor gave her some excercises to strech the tissues and after a few months pain was gone good luck

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Good afternoon @davej. thanks for posting your girlfriend's experience with her tailbone. I know everyone is different and yet to save everyone will always have pain is pretty global in its perspective. My tailbone was broken during the delivery of my daughter. After her birth, it healed completely and I have never had any issues. Good luck to others.

Chris

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jim19608 | @jim19608 | Oct 25, 2021

I have had this pain for almost a year ….had shots …therapy….9 doctors…I walk 8-10 miles a day play pickleball 2-3 hours a day …water aerobics 4 times a week never any pain ….sit down for 15 minutes hurts terribly…help !!!!!

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Oct 25, 2021
In reply to @jim19608 "I have had this pain for almost a year ….had shots …therapy….9 doctors…I walk 8-10 miles..." + (show)
@jim19608

I have had this pain for almost a year ….had shots …therapy….9 doctors…I walk 8-10 miles a day play pickleball 2-3 hours a day …water aerobics 4 times a week never any pain ….sit down for 15 minutes hurts terribly…help !!!!!

Jump to this post

Hello @jim19608, Welcome to Connect. Not much worse that sitting down to rest and being greeted by pain. I sometimes have pain in my tailbone area when sitting for too long. Is your pain in the tailbone area or on the sides of buttocks?

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jim19608 | @jim19608 | Oct 25, 2021

The pain is in my Ishel bone or the sit bone

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