(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Good Day, my name is Maggie and 10 days ago I was admitted to the hospital with pneumonia and discharged later with pneumonia, bronchiectasis and MAI. They have started me on the 'big 3'. So far I seem to be tolerating these OK as far as appetite, nausea and diarrhea. I see my GP this week. I am overwhelmed, but grateful to have found this group. I have only had one positive sputum test. I had a bronchoscopy, came up with a different rare bacteria (moraxella?), but again negative for MAI. This was my second case of pneumonia this year, so maybe that is why they opted to start the antibiotics. Sad to hear Katherine, someone I never knew or interacted with, passed away.

I am 59, about 15 pounds overweight (though losing weight this year) and was very active. This has kicked my butt. I have no idea where it came from. I live in upstate NY and work as a bookkeeper, with some public interaction. I want to get back to exercising, but need to recover from the pneumonia first. I also see a cardiologist later this month and will clear exercise with him.

Thanks for reading.

OMG I was just diagnosed in July of this year. I was terrified. I have started my antibiotics 2 weeks ago. My question to you is...when you started your antibiotics did you have any chest discomfort in the first few weeks? I've been told I have a hole in my right lung and I find I'm having discomfort from time to time...regards
Jazzmin

Good Day, my name is Maggie and 10 days ago I was admitted to the hospital with pneumonia and discharged later with pneumonia, bronchiectasis and MAI. They have started me on the 'big 3'. So far I seem to be tolerating these OK as far as appetite, nausea and diarrhea. I see my GP this week. I am overwhelmed, but grateful to have found this group. I have only had one positive sputum test. I had a bronchoscopy, came up with a different rare bacteria (moraxella?), but again negative for MAI. This was my second case of pneumonia this year, so maybe that is why they opted to start the antibiotics. Sad to hear Katherine, someone I never knew or interacted with, passed away.

I am 59, about 15 pounds overweight (though losing weight this year) and was very active. This has kicked my butt. I have no idea where it came from. I live in upstate NY and work as a bookkeeper, with some public interaction. I want to get back to exercising, but need to recover from the pneumonia first. I also see a cardiologist later this month and will clear exercise with him.

Thanks for reading.

Apparently I was tested a few years ago, and that was OK. We talked through what some of my symptons should be if this was a problem, and I opted not to do it. (sadly, tired of tests..) He has no issue ordering the test, and after reading Nick's words, I might call and ask for it. This was my GP, who originally sent me to the hospital. I'm his first patient with MAI... I feel like I have a team though, so I'll also talk to my IFD & my pulmonary Dr about the test. Pneumonia is gone, I'm feeling better and exercising again. Was taking cefpodoxime and am glad to be off of that!

Apparently I was tested a few years ago, and that was OK. We talked through what some of my symptons should be if this was a problem, and I opted not to do it. (sadly, tired of tests..) He has no issue ordering the test, and after reading Nick's words, I might call and ask for it. This was my GP, who originally sent me to the hospital. I'm his first patient with MAI... I feel like I have a team though, so I'll also talk to my IFD & my pulmonary Dr about the test. Pneumonia is gone, I'm feeling better and exercising again. Was taking cefpodoxime and am glad to be off of that!

Apparently I was tested a few years ago, and that was OK. We talked through what some of my symptons should be if this was a problem, and I opted not to do it. (sadly, tired of tests..) He has no issue ordering the test, and after reading Nick's words, I might call and ask for it. This was my GP, who originally sent me to the hospital. I'm his first patient with MAI... I feel like I have a team though, so I'll also talk to my IFD & my pulmonary Dr about the test. Pneumonia is gone, I'm feeling better and exercising again. Was taking cefpodoxime and am glad to be off of that!

Apparently I was tested a few years ago, and that was OK. We talked through what some of my symptons should be if this was a problem, and I opted not to do it. (sadly, tired of tests..) He has no issue ordering the test, and after reading Nick's words, I might call and ask for it. This was my GP, who originally sent me to the hospital. I'm his first patient with MAI... I feel like I have a team though, so I'll also talk to my IFD & my pulmonary Dr about the test. Pneumonia is gone, I'm feeling better and exercising again. Was taking cefpodoxime and am glad to be off of that!

Good Day, my name is Maggie and 10 days ago I was admitted to the hospital with pneumonia and discharged later with pneumonia, bronchiectasis and MAI. They have started me on the 'big 3'. So far I seem to be tolerating these OK as far as appetite, nausea and diarrhea. I see my GP this week. I am overwhelmed, but grateful to have found this group. I have only had one positive sputum test. I had a bronchoscopy, came up with a different rare bacteria (moraxella?), but again negative for MAI. This was my second case of pneumonia this year, so maybe that is why they opted to start the antibiotics. Sad to hear Katherine, someone I never knew or interacted with, passed away.

I am 59, about 15 pounds overweight (though losing weight this year) and was very active. This has kicked my butt. I have no idea where it came from. I live in upstate NY and work as a bookkeeper, with some public interaction. I want to get back to exercising, but need to recover from the pneumonia first. I also see a cardiologist later this month and will clear exercise with him.

Thanks for reading.

Good Day, my name is Maggie and 10 days ago I was admitted to the hospital with pneumonia and discharged later with pneumonia, bronchiectasis and MAI. They have started me on the 'big 3'. So far I seem to be tolerating these OK as far as appetite, nausea and diarrhea. I see my GP this week. I am overwhelmed, but grateful to have found this group. I have only had one positive sputum test. I had a bronchoscopy, came up with a different rare bacteria (moraxella?), but again negative for MAI. This was my second case of pneumonia this year, so maybe that is why they opted to start the antibiotics. Sad to hear Katherine, someone I never knew or interacted with, passed away.

I am 59, about 15 pounds overweight (though losing weight this year) and was very active. This has kicked my butt. I have no idea where it came from. I live in upstate NY and work as a bookkeeper, with some public interaction. I want to get back to exercising, but need to recover from the pneumonia first. I also see a cardiologist later this month and will clear exercise with him.

Thanks for reading.

Good Day, my name is Maggie and 10 days ago I was admitted to the hospital with pneumonia and discharged later with pneumonia, bronchiectasis and MAI. They have started me on the 'big 3'. So far I seem to be tolerating these OK as far as appetite, nausea and diarrhea. I see my GP this week. I am overwhelmed, but grateful to have found this group. I have only had one positive sputum test. I had a bronchoscopy, came up with a different rare bacteria (moraxella?), but again negative for MAI. This was my second case of pneumonia this year, so maybe that is why they opted to start the antibiotics. Sad to hear Katherine, someone I never knew or interacted with, passed away.

I am 59, about 15 pounds overweight (though losing weight this year) and was very active. This has kicked my butt. I have no idea where it came from. I live in upstate NY and work as a bookkeeper, with some public interaction. I want to get back to exercising, but need to recover from the pneumonia first. I also see a cardiologist later this month and will clear exercise with him.

Thanks for reading.