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Savella for Peripheral Neuropathy?

Neuropathy | Last Active: Sep 5, 2021 | Replies (19)

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@blt054

Hi, thank you for the info! Well, allot is still up in the air sort of. I also have Hep C which may or may not be a contributing factor. Also, Mayo thru blood samples submitted by one nuerologist determined that I have a blood disorder called Cryglobulemia. It has something to do with when my body temp falls below a certain level it causes the platlettes to gather together instead of staying spread out like normal. I don't really understand it well, I just know I get cold very easy & have to be careful of hands & feet not being able to feel them well. Even hot things, I've burned my hands on hot coffee mugs, hot pans, as well sitting for long periods of time my feet get overly cold & I don't realize how cold they really are. I'm proceeding soon with a treatment program for the Hep C. I'm 67, I have scoliosis, allot of degenerative spinal issues. Have had lower lumbar surgery in which the bone canals going down into the legs were drilled out to widen to make more room for the nerves & I think at least 1 vertabrae was taken out. Since that surgery I did have a fall breaking my right hip, thanks to the medications messing my balance up so bad. I've not been given a clear diagnosis. I also have problems with my cervical (neck) spinal area & have had injections to relieve numbness/tingling there, although it has gotten worse down both arms & I sometimes feel it in my face & across my lips/cheeks. I'm scheduled to see Dr. Lawson Neurologist @ Dartmouth Hitchcock Lebanon, N.H. in Oct starting out with EMG studies & moving on from there. In my area doctor appt's are very hard to get, booked out many months in advance. I don't know how or if the Cryglobulemia plays a part in Neuropathy or not. I suppose it's something each person would need to bring up to their own doctor & ask to have their blood tested for. It would be interesting to know how many have the same?

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Replies to "Hi, thank you for the info! Well, allot is still up in the air sort of...."

@blt054, I had not heard of Cryoglobulemia but found some information on the Vasculitis Foundation website that explains it and may help you learn a little more about it - https://www.vasculitisfoundation.org/education/forms/cryoglobulinemia/

There is an older discussion you might find helpful - After Hep C Treatment: https://connect.mayoclinic.org/discussion/people-cured-from-hep-c-harvoni/

I'm not sure if Cryglobulemia plays a part in neuropathy or not but that would be a good question to ask your neurologist at your next appointment. You might also ask if the Hep C virus plays a part in your Cryglobulemia. I found this article mentioning a possible connection -- Hepatitis C Virus-Induced Cryoglobulinemia: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2755598/.

I'm wondering if you might find the following site helpful for planning your conversation with your doctor. I have started doing this myself so that I don't forget to ask the questions I wanted to get answered -- https://patientrevolution.org/visit-tools