Many months of 24/7 vertigo...very debilitating
Hi all, this is my first post on this site. I have had Rheumatoid Arthritis for 13 years, I am currently 45, turn 46 shortly. I have been on many biologics, basically since they came out, including Remicade, Enbrel, Humira, and Orencia. After having many infections in a short amount of time (approx. 2 months), I was on and off of my Humira. During this period, I woke up with extreme dizziness, 24/7, do not even have to move my head or open my eyes. This lasted for 8 1/2 months! I quit my Humira all together, as we had to look at this as a possible reason for my central vertigo. It has been proven through inner ear testing that it is central. I also had an MRI of brain done which came back normal. My RA and Osteoporosis became very bad after being off the biologics for about a year due to the horrible vertigo. It became so bad that I finally decided recently to try Orencia. My vertigo had subsided, and it was about 85% gone for about 2 1/2 months, then returned after only a month on Orencia, and is exactly as it was before, 24/7, very miserable, in which my head perceives it is in constant motion. I have a rocking sensation in my head at all times, worse when laying down, feel very drugged, very off balance. I have to believe this is due to these biologics!! Has anyone else experienced anything like this with biologics or other meds for other chronic illnesses? I would so appreciate your comments! I have been to several neurologists who cannot grasp this, so I have been left to suffer immensely...Thanks for your time!
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Hello @keeg1010
I'm glad that your mom's vertigo problem was solved so quickly and easily. I appreciate you sharing how a low Vitamin B12 level can contribute to vertigo.
I had never heard of vertigo caused by a B12 deficiency but you learn something every day 🙂
Hoping that things have gotten better for you in the last few years. I am new to this journey but have found amazing relief and focus from The Steady Coach on YouTube. Please, everyone, check her out! Very well life changing.
I am also doing PT for horizontal canal issue, cervicogenic dizziness, and vestibular-occular issues.
Hi, yes , thank you! I got better when I stopped worrying about it altogether. I have done acupuncture for a year. It helped so much! Doing mindfulness, self work , setting my mind on illness free
health mode. If you believe your body is capable of healing itslef,- healing happens ! Also I do detox and get rid of parasites(worms) every 6 months , take herbal remedies, no meds nor chemicals in anything , sugar free and low salt diet, organic
whole food only, also fasting. Trying to keep the cells free from the glucose and toxins , otherwise illnesses and viruses stick if they have what to live off in the body . People do not realise how powerful our mind is and how much damage do we do with toxins (physical and mental) to our only best friend- our body.
That is wonderful news, and great info!
How do you keep your glucose down, and what parasite cleanse do you do?
I've been doing a lot of stress work as well as doing it nucca chiropractic, and physiotherapy. Getting a bunch of lab work done through a functional medicine doctor and eating an anti-inflammatory diet, and doing tons of walking and stretching.