Hi Sue,
I saw my new doc at Duke yesterday and, on balance, it was a good experience. With several years of old CT scans and PFTs, he thought I was still fairly mild, but declining. How soon? How far? Who knows? He started me on OFEV. For me he thought it was preferable to the other one. Even with your helpful tips on dealing with the side effects, I wasn't at all enthusiastic. But I was out-voted two to one. (My wife went with me.)
The plan is for me to have a PFT every three months--alternating with my pulmonologist here in Asheville--and have a CT scan annually or sooner if needed. I'm okay with that and hope my local pulmonologist will be too. I haven't broken the news to him yet.
Thanks again for your help.
Bob