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Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 14 6:52am | Replies (89)
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@lknipple

noticed a lump on my shin. Got a biopsy and was diagnosed with b cell mantle. Took 4 rounds of chmo until my white blood cells got to low. Had a scan and found the chemo did nothing. Lump has almost tripled in size. Started radiation. Am now done 12 out of 20 sessions and the pain of all the sores from burning is almost unbearable. Is it worth keeping up with the rest of the radiation as no noticable difference?

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Replies to "noticed a lump on my shin. Got a biopsy and was diagnosed with b cell mantle...."
Colleen Young, Connect Director | @colleenyoung | Aug 30, 2021

@lknipple, this sounds very discouraging to say the least. I'm sorry to hear that standard treatments have not shown the results you and your team were hoping for. I'm hoping @roberthall0452 @maxwell123 @lottajoy @sweede536 will return to share their experiences with you.

lknipple, what type of chemotherapy did you have? Has your oncologist talked to you about other possibility like targeted therapy or immunotherapy or stem cell transplant? Are you being treated at a major cancer center?

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