Anyone tried a time release medication for peripheral neuropathy?

Posted by Mary Klimek @brklimeks, Aug 22, 2021

Has anyone tried a time release medication for painful peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@tigreyes2004

I have neuropathy in my feet & legs. I only take 600 mg of Gabapentin & it never really did help but now I am experiencing really bad tingling which is causing me to be depressed & don't feel like doing anything. Does anyone know of anything that would take this feeling away. I'm at wits end. I don't know what to do & the doctors are not helping. Any help would be appreciated.
Thank you
Tigryes

Jump to this post

@tigreyes2004 - I'm sorry to hear you have not been able to find anything that makes the pain go away and provide some relief. The Foundation for Peripheral Neuropathy has some different treatments listed on their site that you might want to look at to see if you want to try them - https://www.foundationforpn.org/what-is-peripheral-neuropathy/treatments/.

Another site that provides some relief for your mind and may help you feel better even with the pain is https://www.resilientoption.com/resources#for-adults

Hoping you have a pain free day.

REPLY
@tigreyes2004

I have neuropathy in my feet & legs. I only take 600 mg of Gabapentin & it never really did help but now I am experiencing really bad tingling which is causing me to be depressed & don't feel like doing anything. Does anyone know of anything that would take this feeling away. I'm at wits end. I don't know what to do & the doctors are not helping. Any help would be appreciated.
Thank you
Tigryes

Jump to this post

@tigreyes2004
Have you considered asking the doctor to increase your gabapentin or are you concerned about side effects?
Jake

REPLY
@johnbishop

@tigreyes2004 - I'm sorry to hear you have not been able to find anything that makes the pain go away and provide some relief. The Foundation for Peripheral Neuropathy has some different treatments listed on their site that you might want to look at to see if you want to try them - https://www.foundationforpn.org/what-is-peripheral-neuropathy/treatments/.

Another site that provides some relief for your mind and may help you feel better even with the pain is https://www.resilientoption.com/resources#for-adults

Hoping you have a pain free day.

Jump to this post

Thank you John.
I am reading the articles & very interesting.
.

REPLY
@jakedduck1

@tigreyes2004
Have you considered asking the doctor to increase your gabapentin or are you concerned about side effects?
Jake

Jump to this post

I have been thinking about it but yes I am scared of the side effects. It seems like they up it & then my body gets use to it & then I am in pain again. I am trying to be tough but it is getting to me. I have minute to minute memory loss now & people say I don't seem my self. I also take 60 mg of Cymbalta which helps a little.
thanks Jake.

REPLY

I take 1200 mgs of gabapentin twice a day - no side effects. And I take a Lyrica at night - it makes me sleepy. Peggy

REPLY
@tigreyes2004

I have neuropathy in my feet & legs. I only take 600 mg of Gabapentin & it never really did help but now I am experiencing really bad tingling which is causing me to be depressed & don't feel like doing anything. Does anyone know of anything that would take this feeling away. I'm at wits end. I don't know what to do & the doctors are not helping. Any help would be appreciated.
Thank you
Tigryes

Jump to this post

The only thing that helped me was kratom and it did wonders. It works for the pain, is 100 natural and not addictive plus gives you energy and cured my depression. I have been taking it about ten years. It also starts working in 30 minutes. It saved my sanity and life.

REPLY

I have burning feet, mostly at nighttime. I started with 100 mg of Gabapentin 5 months ago. It worked well for a few days and then back to same old burning feet. Then to 300 mg and same story of working for a few days. I was up to 1200 mg and then my doc added Cymbalta on top of Gabapentin and that has worked very well. Now I am starting to reduce the Gabapentin and currently at 600 mg. I will try to reduce it 300 mg soon. That is my story.

REPLY
@pkagarwal

I have burning feet, mostly at nighttime. I started with 100 mg of Gabapentin 5 months ago. It worked well for a few days and then back to same old burning feet. Then to 300 mg and same story of working for a few days. I was up to 1200 mg and then my doc added Cymbalta on top of Gabapentin and that has worked very well. Now I am starting to reduce the Gabapentin and currently at 600 mg. I will try to reduce it 300 mg soon. That is my story.

Jump to this post

That's what I take but it was helping a little & now I am very bad.Best of luck to you.

REPLY
@pkagarwal

I have burning feet, mostly at nighttime. I started with 100 mg of Gabapentin 5 months ago. It worked well for a few days and then back to same old burning feet. Then to 300 mg and same story of working for a few days. I was up to 1200 mg and then my doc added Cymbalta on top of Gabapentin and that has worked very well. Now I am starting to reduce the Gabapentin and currently at 600 mg. I will try to reduce it 300 mg soon. That is my story.

Jump to this post

Good evening @pkagarwal, I couldn't help but notice that you have handled the Gabapentin similarly to what I did. I too am now at 600 mg in the evening and wondering if I should try to go to 300. I was at 1200 like you. I added Cymbalta, first at 30 mg, and raised it to 90 mg as I was withdrawing from Gabapentin. It is working for me.

Have you used in other pain medications for your feet? Do they ever feel like icicles?

May you have contentment and joy.
Chris

REPLY
@jakedduck1

@brklimeks
I'd give the time-release a try. Time release meds are known to have fewer side effects. The greatest benefit for you would be that it's not as likely to cause you to be so drowsy since your not getting such a large does all at once. Of course extended-release version will be more costly, probably substantially more. I don't believe there is a generic available yet. The name of the gabapentin extended release medication is called “Gralise.” Also it may be necessary to get a prior authorizationfor this medication. Your doctor will have to justify why he's ordering it. My Neurologis refuses to prescribe immediate-release seizure meds (provided an extended-release formulation is available) unless he can't get it covered by insurance and the patient can't afford it.
I think you'll be happy with this version, it's normally only taken once a day.
I take all my medications in the morning to one of my doctors dismay but I told her isn’t it better I take it in the morning than to forget it. That quieted her down for now.
Good luck,
Jake

Jump to this post

Thanks Jake. I have an appointment with him in October.

REPLY
Please sign in or register to post a reply.