Antiphospholipid: Weird symptoms, don't understand what’s going on

Hello @elizabeth513 and welcome to Mayo Clinic Connect. I am sorry to hear of your diagnosis of Antiphospholipid Antibody Syndrome. Your symptoms sound very difficult. I'm sure that you have concerns about starting college, given the symptoms you described.

We do have a discussion group on this topic, however, the discussions are several years old. You might find it helpful to at least read them, https://connect.mayoclinic.org/discussion/antiphospholipid-antibody-syndrom/

Here is some information from Mayo Clinic's website, https://www.mayoclinic.org/diseases-conditions/antiphospholipid-syndrome/symptoms-causes/syc-20355831.

I would also like to invite other members of Connect who have discussed having this diagnosis, @patowen1 @georgiagirlrelocated, @skymya, @soitis4590, @taogirl2, @colettehellerud, @lagata, @lisaa, @lena999 @zebraclaire97 @irenekw @bruges

As you have a lot of symptoms that are causing you concern, have you considered getting a second opinion at a research-oriented health care facility such as a university medical school or a facility like Mayo Clinic?

Thank you for your response. I fortunately do live in ND about 4 1/2 hours away from Rochester. If my care team can’t get to the bottom of what’s going on I definitely will make a trip up there to see be seen by someone.

That sounds like a good plan, @elizabeth513. I hope you are able to find some answers soon.
I would be interested to hear how you are doing. Will you post an update periodically?

I do too, and yes I will definitely try and stay connected on this thread. I never knew this existed until today and I’m actually so grateful to see that it does.

I understand what you mean, @elizabeth513. Connect was a great help to me when I first joined and was facing my third surgery for a rare type of cancer. It helps to have others who understand what it is like to face a health crisis.

@elizabeth513 - I’m glad you found Connect!
I have a couple of thoughts regarding a young adult like you start having rapid heartbeat- tachycardia- and sweaty palms as well as weight loss.
It could be an overactive thyroid gland - it speeds up your metabolism.
Blood tests can diagnose this.
There are a couple of other hormones that can also produce similar symptoms- that would be more rare, but could be part of your doctor’s evaluation.
Do you have a family doctor?
ER doctors don’t have the time to go into detailed testing. They want to make sure you don’t suffer from something very acute and will let your own doctor do other testing.
What do you think?

I had Grave's Disease at one point in my life, rapid heart, weight loss, all the same. Get your thyroid checked, run a TSH test with your primary care doc.

I have had my thyroid checked. I have attached a screenshot of the test result as it was borderline below normal.

I had fast heart rate came on in April. In and out of hospital. High blood pressure. Holster monitor. Keep telling me nothing wron, however, I have gone from very healthy, active to couch potato. Swollen lymph nodes and episodes of hot face flushing and almost passing out, then my bowels empty out. I’m weak and not able to do much of anything. No answers from medical Doctors and have had every test there is. I’d like to know if you get any answers.

@jwillits8 it looks like you are attempting to respond to a member's comment.

The best way to flag a member that you're replying to them is to use the blue "REPLY" button directly below their comment and/or use the @mention option whereby you use the "@" + their username. In your case it is @jwillits8.

Can I ask to whom you are responding to in order to ensure you can make a connection with that member?