Anyone had a problem with neuropathy after receiving the vaccine?

The John Hopkins data was using confirmed cases, not total infections. Total infections are always going to be unknown.

Hi John, my sincere thanks for sharing that info. The link states that multisystem inflammatory syndrome affects children and adults who were previously infected with Covid. Thankfully I have not so I don't think that's what is going on. My symptoms also do not match which I was glad to see. I was recently told that the vaccine likely pushed me into an autoimmune overload which is not to say I have an autoimmune disease but rather there is now excess inflammation in my body and my immune system is unable to regulate due to the overload. As a result I am experiencing peripheral neuropathy and RA-like symptoms in my knees and hands. I am hoping that over time the medication I am taking, along with supplements and an anti-inflammatory diet will help. Many thanks again for your thoughtful reply.

I'm so sorry to hear. Sounds like there's a lot of us that have had very similar reactions. Have you all now recovered from your adverse reactions? I truly hope so.

Many thanks for your well wishes. I completely understand your decision to wait until you feel it is safe to be vaccinated. I felt much the same way even though I was eligible to get vaccinated much earlier than I finally did. I was waiting to hear about any potential side effects besides the sore arm and flu-like symptoms we were told to expect. All I was told and all I read was that it was safe and I should just do it. Unfortunately my body couldn't handle it and from what I've read on this message board and elsewhere plus what I've heard from my doctor, I'm far from alone. But you don't hear about a lot of these serious side effects on the news. That's unfortunate because people need to be aware of all the risks in order to make a truly informed decision that they are comfortable with. Wishing you well and all the very best in deciding what is right for you.

Oh my goodness, I'm so sorry to read about your ordeal. It does sound like we have had much the same issues. I keep thinking that surely the inflammation will peak and start to taper off and all of these awful symptoms will gradually abate. But instead it seems like as time goes by some things, my hands in particular, are getting worse and I worry how far this might go. Since I was advised not to get the second shot I keep thinking maybe as my partial immunity wanes, so will the adverse reaction but who knows. And for someone like you who is fully vaccinated, had a severe reaction and now looking at waning immunity and boosters...what in the world do you do? I agree that it takes a mental toll as well and I too wish this syndrome would be acknowledged but I've heard nothing reported. I guess things like this are considered "rare" so not worth warning people about. However I'm very concerned that it may not be so rare anymore if they have to regularly administer boosters to maintain immunity. Have you tried following an anti-inflammatory diet or vitamin supplements of any sort? I figure if it might help I'm giving it a go. I also have been using a magnesium lotion on my legs. Just started all that so it's too soon to know if it will be beneficial. I hope you will post updates on how you are doing. Keep positive, I know it's hard, and I pray we all see improvement soon too!

@sdf2000 so sorry for the misunderstanding. I should have said I used the data provided by John Hopkins University for the known corona virus deaths in relationship to the total confirmed covid infection cases. All my information was based on their website.
We all have health issues to overcome. Don’t give up in finding answers for yourself. Look at me, 5 years and still learning through trial and error. Basically I have no other choice when physicians have no clue for guidance.

I had the same reaction - to not only the Covid vaccine, but also the Quadravaletn flu vaccine in Oct 2020 and the Shingrix vaccine in Jan 2020. My body apparently reacts to the immune system activation with a hyper inflammatory flare. It affects ALL of me - at one point even my scalp hurt. Fortunately my doc figured this out and I am given a two week course of prednisone. That calms it down.

Some good news too. My daughter, who is immune-suppressed, received her 3rd Moderna dose on Tuesday. She had Covid in 2020, 2 doses of the vaccine in December and January, and was very ill each time. The third dose left her with a sore arm, mild aches and mild fatiguee. It just shows that a person will not necessarily react to the vaccine every time.

Sue

Hi Sue, wow, that's awful to get a reaction like this to every vaccine you receive. I'm glad to hear that a two week course of prednisone calms it down for you. My doctor gave me a Medrol pack which was I think 6 days. It didn't help at all but I wonder if a regimen similar to yours might have helped more. I'll ask my doctor about it. That's wonderful that your daughter only experienced a mild reaction to her booster shot. Hopefully that third dose will give her plenty of protective antibodies. Many thanks again for your reply!

So, here I am again. I'm wondering how the excess inflammation issue is/was diagnosed.

While my main concern was my tingling/cold/burning feet, I also had swollen fingers and excessive arthritis in my knees (I've always had arthritis in my knees that comes and goes, but is usually controlled with Aleve and Fish Oil). Now I'm wondering if the more intense flares are linked to other vaccines I've had in the past 5 years (both pneumonia shots, shingles, flu, etc.), but not as intense as the Covid, which pushed me into the neuropathy. Seems plausible, but am wondering how the theory can be proved.

After my second course of prednisone (10 mg, 3/3/3/2/2/1/1), my symptoms again went away on Day 3, but returned (but not as severely) by Day 5.

Now, 4 days after my last dose, everything is milder. My feet and calves feel like I'm wearing socks when I'm not. There's very light tingling and they sometimes feel cold ,even though it's 90+ degrees here and rarely lower than 80 degrees in my house), but the burning pain has not returned. I can now put my rings on, so my finger joint swelling has gone down significantly. I've also noticed that I can squat down at work without having to use a hand to pull myself back up... my legs/knees can propell me back upright on their own.

I think I'm officially on the mend from whatever the hell was going on.

I'm still taking the gabapentin, so maybe that's the miracle that is making me feel better, or maybe it's some combination of anti inflammatory, magnesium, fish oil, vitamin d, and b-6 supplement doing the trick. I'll eventually start alleviating these things one by one to see if I can quit taking a meal full of pills every night.

My podiatrist has recommended PT, but I'll probably avoid the expense of that as I continue to improve. If I have a setback, I'll definitely be ringing them to set up an appointment.

For now, I'd really like to know if there's some test that can pinpoint the excessive inflammatory. I'll be due for the booster in a few months (recommendation is 8 months after 2nd dose unless immunocompromised). Unless this can be diagnosed and treated, I'll be waiting as long as possible to opt in. Working in a pharmacy, and being on the frontline for testing and vaccinating, I know I'll have to protect myself eventually. I just don't want to go though this again . If there's some way to prove that's what I've experienced, maybe it can be resolved quicker with future vaccines.

Flu shot season has also arrived. I'll be getting that as soon as I dispense the first flu medication this year.

Have you tried a course of prednisone yet? Our symptoms sound so similar that I'm now wondering if we're both experiencing a blasted immune response that just needs to calm the frack down. I feel like the only thing that really helped was the prednisone; however, it could have been the slower working other stuff I've been taking all along.

I agree that this has been no walk in the park, but it hasn't hampered my ability to work, or been a severe illness of any sort. Just irritating which makes me irritable with everyone around me.

I've noticed that I opt to go through a drive through rather than walk into a store. So it's been small changes in my life, nothing earth shattering.

I did actually go to a plant nursery, plant some seedlings, and start some tomato plants last weekend. I also had my brother come over to assist with some two person chores recently, so I must be on the mend. I've let some things just slide in the past 6 months simply because I didn't want to be on my feet, even though not being on my feet did not improve anything. My "get up and go do" was just broken.

Hope you're doing well and hope to get an update from you soon.