1. < Autoimmune Diseases

Autoimmune Fatigue and/or Chronic Fatigue

Posted by Langold @rarelybees2889, Jan 8, 2020

Hi Wondering if anyone has been diagnosed with autoimmune fatigue and/or chronic fatigue? I was diagnosed at Mayo Clinic. I wish there was more research into both of these...

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siosal | @siosal | Aug 19, 2021
In reply to @peach414144 "Thank you for this very important information. May I ask what medical problem does rituxin help..." + (show)
@peach414144

Thank you for this very important information. May I ask what medical problem does rituxin help with? Perhaps I will look into it.

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Hi
Its used to treat vasculitis and is used in combination with chemo for non hodgkins lymphoma. I dont know what else its used for .
I am glad u found the information useful.
Best of luck!

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1 reply
peach414144 | @peach414144 | Aug 19, 2021
In reply to @siosal "Hi Its used to treat vasculitis and is used in combination with chemo for non hodgkins..." + (show)
@siosal

Hi
Its used to treat vasculitis and is used in combination with chemo for non hodgkins lymphoma. I dont know what else its used for .
I am glad u found the information useful.
Best of luck!

Jump to this post

Thanks again. I had mentioned a few days ago but would like to repeat in case you did not see it. I started Hydroxychloriquin a few months ago and now my psoriatic (PsA) nails are growing back. This takes away much pain and infections.

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abrown2 | @abrown2 | Sep 1, 2021
In reply to @oldkarl "@abrown2,, Just remember. Most initial genetics searches only cover less than 1% of the whole genome,..." + (show)
@oldkarl

@abrown2,, Just remember. Most initial genetics searches only cover less than 1% of the whole genome, so they miss most of the rare diseases. I think this is a rip-off, but it is what it is. Be sure to get the whole 100% of the genome. Not all labs offer the 100%. Those that do include Sequencing.com, Dante, and a few others. If you get less than 1.000,000 hits on your genome, you got only a partial. Mine is just under 250,000, less than 1% of the whole. For a small fee, Sequencing.com and some others will re-read your data for you.

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Thank you again. Maybe it will help 🙂

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dancing1 | @dancing1 | Sep 2, 2021

I have sjogrens,scherderma and Raynauds should I ask my Doctor to do a Covid Anti body test?

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1 reply
petuniamom567 | @petuniamom567 | Sep 2, 2021
In reply to @dancing1 "I have sjogrens,scherderma and Raynauds should I ask my Doctor to do a Covid Anti body..." + (show)
@dancing1

I have sjogrens,scherderma and Raynauds should I ask my Doctor to do a Covid Anti body test?

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You should have a Covid Vaccination series first. You won't have Covid antibodies if you didn't have the disease or the injections. What you're describing are all underlying causes for having the shots. Of course,
check with your physician first. So far, no one has found that antibodies from one disease protect against another.

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dancing1 | @dancing1 | Sep 2, 2021
In reply to @dancing1 "Thank you!" + (show)
@dancing1

Thank you!

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I did have my first two Covid vaccines 61/2 months ago. My Doctor is just still saying I am at extremely high risk. I’m staying in and just being cautious and masking but live in Az where most are not masking and socializing normally.

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1 reply
siosal | @siosal | Sep 2, 2021
In reply to @siosal "I have been waiting for results of a covid antibody test Called dr to see if..." + (show)
@siosal

I have been waiting for results of a covid antibody test
Called dr to see if he had gotten results He had not but i found out i had no b-cells at all which means that even after having 2 moderna shots i have NO protection.
Not sure if it makes sense to get third shot.
I have been getting rituxin infusions for 2 years to calm down my over active immune system.
I didnt know until today that i had no protection from the vaccines. Sounds scary to me.

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I now have covid!
I am going for regen/cov infusion tomorrow

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1 reply
Mentor
Sue, Volunteer Mentor | @sueinmn | Sep 2, 2021
In reply to @dancing1 "I did have my first two Covid vaccines 61/2 months ago. My Doctor is just still..." + (show)
@dancing1

I did have my first two Covid vaccines 61/2 months ago. My Doctor is just still saying I am at extremely high risk. I’m staying in and just being cautious and masking but live in Az where most are not masking and socializing normally.

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Perhaps you should ask your doctor to order a 3rd dose due to the underlying conditions?

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