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Stroke, high factor VIII

Stroke & Cerebrovascular Diseases | Last Active: Mar 3 8:58am | Replies (18)

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@kathiemk

It was found after suffering a stroke (a current routine test done at rehab hospital I was at). But, it didn’t trigger them not to recommend Warfarin as a blood thinner to my primary care dr. resulting in brain/body bleeds for me. 3 trips to 2 hospitals in 4 days….

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Replies to "It was found after suffering a stroke (a current routine test done at rehab hospital I..."

Hi @kathiemk I understand a high count of Factor VIII can be a warning sign for blood clots. Since your physicians placed you on Warfarin did they not often do PT/INRs to assess and adjust for the Warfarin dosage? Sorry to hear you had bleeds. I hope the bleeds did not cause any deficits. Are you doing OK now? Was the remedy a vitamin K injection?

@kathiemk, I'm so sorry to hear you've had such a hard time with bleeding issues. Are you having trouble regulating your INR levels, I'm presuming or what has your doctors said is the cause? I was on warafin the first time and I had a hard time staying regulated despite being very careful of my diet etc. I had to go daily to every other day to get checked for quite a while which was such a pain. Now with this second round thankfully I'm on Eliquis which Is a completely different drug and that is no longer an issue for me. Your physician would have to advise with your current medical condition(s) if a biologic blood thinner would be an option, or even the right option for you or not.

I'll hope you find a way to get regulated quickly. I'm sure it is very distressing. Hang in there!

Heidi202kathiemk I'm so sorry to hear you've had such a hard time with bleeding issues. Are you having trouble regulating your INR levels, I'm presuming or what has your doctors said is the cause? I was on warafin the first time and I had a hard time staying regulated despite being very careful of my diet etc. I had to go daily to every other day to get checked for quite a while which was such a pain. Now with this second round thankfully I'm on Eliquis which Is a completely different drug and that is no longer an issue for me. Your physician would have to advise with your current medical condition(s) if a biologic blood thinner would be an option, or even the right option for you or not.

I'll hope you find a way to get regulated quickly. I'm sure it is very distressing. Hang in there!

Heidi2020

I don't know if I have Factor VIII but a few family members have VIII. In any case, since my stroke was a bleed I am not supposed to have anything like a blood thinner. I am so sorry you have had so much so many trips to the hospital. So darn frightening that we mighty have another stroke. My doctor said I have a 90 percent chance of NOT having a stroke again. Blessing to you and will put you on my prayer list.

Kind Regards,
Michele