COVID vaccines and neuropathy

Yes I contracted polyneuropathy from the covid vaccine

Hello, I'm new. I was diagnosed with small fiber neuropathy and Autonomic Dysfunction in 2015. I'm 68 years old.
I received my first dose of Moderna 3/2021. I was fine that night. When I woke up in the morning I realized my neuropathy and autonomic issues were off the charts! I suffered terribly for three and a half days. I've never ever felt this bad. It took over 3 weeks before I was back to my normal where I was before I got my shot. I had "Covid arm", 8 days after my shot.
I emailed the hospital that I got my Moderna shot from. A doctor called me 3 days later. He said I had two options; One don't get the second dose, or two stay with someone if I did get the second shot. I've been watching the developments and understand the second Moderna dose side effects are usually worse. I did report my symptoms to VAERS.
I've held off on second dose until recently. Now with the Delta variant running rampant, in spite of the side effects I've decided to get a second dose. I plan to stay with a family member after I get my shot this week until I'm able to be back home by myself. Hoping for a good outcome, glad I will be fully vaccinated, and no matter what I will continue to wear a mask in public.

Hello @jay4422000 and welcome to Mayo Clinic Connect. I am wondering if you reported your experience to VAERS?

How long ago did you have your second shot?

Hello @kzee64, Welcome to Connect. I'm sorry to hear that you had such a bad reaction from your first Moderna vaccine but it is really good news that you are back to your normal with you 2015 diagnosis of small fiber neuropathy and autonomic dysfunction. It's also good to hear after reporting the symptoms from the first shot that the doctor called you back and you reported your symptoms to VAERS.

Now that you have made a decision to stay with family after your second Moderna shot, can you let us know if you have the same or similar symptoms after you receive the second shot?

Hello @johnbishop, I will post again as soon as I'm recovered from my second dose which I'm getting tomorrow. I'm feeling very nervous tonight, but trying to keep a positive outlook. Thank you for your comments.

Please keep us posted and thank you for sharing. You are in my prayers.

After reading many comments on this message board for a few weeks as a guest. I finally decided to join and share my experience. I got my first (and only) Pfizer shot in early April. Five days later my feet started to burn and the bottom of my toes tingle. As the days went by the burning spread up to my ankles and then my lower legs. Around the same time I began to experience a tight sensation around my calves, like wearing tight socks but..I'm not wearing socks. As the days/weeks went by more stuff happened. Burning in my lower arms, inflammation in my knees, stiffness and inflammation in my fingers, along with throbbing pain in the pads of my fingertips and one evening a vein in my finger swelled, throbbed and my finger turned red and blue. The swelling in that finger has not completely gone away after a month. For a few weeks I had a severe sensitivity in my skin all over my body. My clothes hurt, Drying myself with a towel hurt. Even the palms of my hands hurt. Thankfully that one issue seems to have subsided but pretty much everything else is still happening 4 months later. I went to my primary doctor. He did blood tests which indicate high inflammation (never had this before the shot). He sent me to a rheumatologist. More tests. No specific auto immune disease is showing up as the cause. They both agreed my immune system had a hyper reaction to the vaccine and both of them advised me not to get the second shot. I was give a Medrol pack which did absolutely nothing. Now I'm on an anti-inflammatory/immuno-suppressant Dmard sulfasalazine which I've been taking for almost three months but no improvement yet. It can take time to work if it's going to help at all. I'm on an anti-inflammatory diet, I'm taking fish oil, vitamins, and using magnesium lotion on my legs but nothing seems to help. I'd like to see a neurologist next and/or a vascular doctor to look at my fingers. I'm hoping over time this will subside but it's pretty discouraging to still feel awful 4 months later. In addition- my 31 year old perfectly healthy daughter got 1 shot of Pfizer and has been dealing with severe tachycardia for months. It has settled down for her somewhat in the last month or so but is not gone. No history of heart issues prior. We both reported our reactions to VAERS but they have not contacted either one of us or our physicians to the best of my knowledge. I am not anti-vax. I do not like only being 1/2 vaccinated. It's not enough. I would love to be fully vaccinated. But this vaccine has wrecked havoc on my health with no end in sight yet. And reading comments all over the internet like getting Covid is worse than any side effects of the vaccine is sadly no comfort to folks like me who have been suffering for months with debilitating side effects from the vaccine that have not subsided.

After reading many comments on this message board for a few weeks as a guest. I finally decided to join and share my experience. I got my first (and only) Pfizer shot in early April. Five days later my feet started to burn and the bottom of my toes tingle. As the days went by the burning spread up to my ankles and then my lower legs. Around the same time I began to experience a tight sensation around my calves, like wearing tight socks but..I'm not wearing socks. As the days/weeks went by more stuff happened. Burning in my lower arms, inflammation in my knees, stiffness and inflammation in my fingers, along with throbbing pain in the pads of my fingertips and one evening a vein in my finger swelled, throbbed and my finger turned red and blue. The swelling in that finger has not completely gone away after a month. For a few weeks I had a severe sensitivity in my skin all over my body. My clothes hurt, Drying myself with a towel hurt. Even the palms of my hands hurt. Thankfully that one issue seems to have subsided but pretty much everything else is still happening 4 months later. I went to my primary doctor. He did blood tests which indicate high inflammation (never had this before the shot). He sent me to a rheumatologist. More tests. No specific auto immune disease is showing up as the cause. They both agreed my immune system had a hyper reaction to the vaccine and both of them advised me not to get the second shot. I was give a Medrol pack which did absolutely nothing. Now I'm on an anti-inflammatory/immuno-suppressant Dmard sulfasalazine which I've been taking for almost three months but no improvement yet. It can take time to work if it's going to help at all. I'm on an anti-inflammatory diet, I'm taking fish oil, vitamins, and using magnesium lotion on my legs but nothing seems to help. I'd like to see a neurologist next and/or a vascular doctor to look at my fingers. I'm hoping over time this will subside but it's pretty discouraging to still feel awful 4 months later. In addition- my 31 year old perfectly healthy daughter got 1 shot of Pfizer and has been dealing with severe tachycardia for months. It has settled down for her somewhat in the last month or so but is not gone. No history of heart issues prior. We both reported our reactions to VAERS but they have not contacted either one of us or our physicians to the best of my knowledge. I am not anti-vax. I do not like only being 1/2 vaccinated. It's not enough. I would love to be fully vaccinated. But this vaccine has wrecked havoc on my health with no end in sight yet. And reading comments all over the internet like getting Covid is worse than any side effects of the vaccine is sadly no comfort to folks like me who have been suffering for months with debilitating side effects from the vaccine that have not subsided.

After reading many comments on this message board for a few weeks as a guest. I finally decided to join and share my experience. I got my first (and only) Pfizer shot in early April. Five days later my feet started to burn and the bottom of my toes tingle. As the days went by the burning spread up to my ankles and then my lower legs. Around the same time I began to experience a tight sensation around my calves, like wearing tight socks but..I'm not wearing socks. As the days/weeks went by more stuff happened. Burning in my lower arms, inflammation in my knees, stiffness and inflammation in my fingers, along with throbbing pain in the pads of my fingertips and one evening a vein in my finger swelled, throbbed and my finger turned red and blue. The swelling in that finger has not completely gone away after a month. For a few weeks I had a severe sensitivity in my skin all over my body. My clothes hurt, Drying myself with a towel hurt. Even the palms of my hands hurt. Thankfully that one issue seems to have subsided but pretty much everything else is still happening 4 months later. I went to my primary doctor. He did blood tests which indicate high inflammation (never had this before the shot). He sent me to a rheumatologist. More tests. No specific auto immune disease is showing up as the cause. They both agreed my immune system had a hyper reaction to the vaccine and both of them advised me not to get the second shot. I was give a Medrol pack which did absolutely nothing. Now I'm on an anti-inflammatory/immuno-suppressant Dmard sulfasalazine which I've been taking for almost three months but no improvement yet. It can take time to work if it's going to help at all. I'm on an anti-inflammatory diet, I'm taking fish oil, vitamins, and using magnesium lotion on my legs but nothing seems to help. I'd like to see a neurologist next and/or a vascular doctor to look at my fingers. I'm hoping over time this will subside but it's pretty discouraging to still feel awful 4 months later. In addition- my 31 year old perfectly healthy daughter got 1 shot of Pfizer and has been dealing with severe tachycardia for months. It has settled down for her somewhat in the last month or so but is not gone. No history of heart issues prior. We both reported our reactions to VAERS but they have not contacted either one of us or our physicians to the best of my knowledge. I am not anti-vax. I do not like only being 1/2 vaccinated. It's not enough. I would love to be fully vaccinated. But this vaccine has wrecked havoc on my health with no end in sight yet. And reading comments all over the internet like getting Covid is worse than any side effects of the vaccine is sadly no comfort to folks like me who have been suffering for months with debilitating side effects from the vaccine that have not subsided.