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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@lk61

@mcd2021 hello and I’m so very sorry you’re going through this. Your symptoms sound so much like mine. I started the very first day after my first Pfizer shot with very slight weakness of my right leg, then later intense burning/tingling in both feet and hands and at times farther up my legs and had random intense stinging sensations just about anywhere in my body at times. My predominant problems now, 8 months later, are still burning/stinging in my feet, weak feeling and twitching in right leg. I do not actual have loss of strength or function in my leg, which is the only thing day to day that is somewhat reassuring. But is that next? I too have only received somewhat vague diagnoses from my doctors. They are baffled and grasping a bit. Have had every test except LP and I kind of wish I had done that too. No medication has really had any effect on my symptoms. They do dissipate when I sleep which is a huge blessing. I hope you’ll get in to see a neurologist soon. That’s who you really need. I hope that this syndrome we’re going through is soon going to be recognized as such so that we might at least get some answers if no relief. The mental damage has been worse than the physical. I am a different person than I was 8 months ago, sadly not for the better. Here’s the kicker - on the advice of all my docs I did get the 2nd shot. My symptoms didn’t get worse. But now apparently we’re looking at waning immunity and boosters. It’s hard to be optimistic at times but I pray we will all start to see improvement!

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Replies to "@mcd2021 hello and I’m so very sorry you’re going through this. Your symptoms sound so much..."

Oh my goodness, I'm so sorry to read about your ordeal. It does sound like we have had much the same issues. I keep thinking that surely the inflammation will peak and start to taper off and all of these awful symptoms will gradually abate. But instead it seems like as time goes by some things, my hands in particular, are getting worse and I worry how far this might go. Since I was advised not to get the second shot I keep thinking maybe as my partial immunity wanes, so will the adverse reaction but who knows. And for someone like you who is fully vaccinated, had a severe reaction and now looking at waning immunity and boosters...what in the world do you do? I agree that it takes a mental toll as well and I too wish this syndrome would be acknowledged but I've heard nothing reported. I guess things like this are considered "rare" so not worth warning people about. However I'm very concerned that it may not be so rare anymore if they have to regularly administer boosters to maintain immunity. Have you tried following an anti-inflammatory diet or vitamin supplements of any sort? I figure if it might help I'm giving it a go. I also have been using a magnesium lotion on my legs. Just started all that so it's too soon to know if it will be beneficial. I hope you will post updates on how you are doing. Keep positive, I know it's hard, and I pray we all see improvement soon too!