Anyone have Laryngeal Sensory Neuropathy?

Hello @janekl

There are several voice exercises on Youtube that are free to use. You can probably find more but here are some links to videos that I found.

Thank you so much for the links. I have had this problem for nealy 20 years.

@janeki,

Twenty years is a long time. There are a lot of other videos on Youtube that have singing exercises you might look at some others as well. I hope they will help you.

I would enjoy hearing back from you after you try the videosa. Will you post an update when you can?

Yes, I will post when I get a chance. With the heat wave, I have spent most days on the water.

Has anyone had loss of smell with Laryngeal Sensory Neuropathy? I have had a cough for over 20 years and have been through many tests, treatments, and medication. My sense of smell has been gone for 5 years. ENT doctor told me I probably will never get it back. Any thoughts?

Hello @rustydog, Welcome to Connect. Until we hear from other members with Laryngeal Sensory Neuropathy who may also have a loss of smell (Anosmia), I thought the following articles might provide some more information for you.

-- Anosmia: https://www.webmd.com/brain/anosmia-loss-of-smell
-- Chronic cough as a sign of laryngeal sensory neuropathy: diagnosis and treatment: https://pubmed.ncbi.nlm.nih.gov/15895778/

Has your cough worsened over the 20 years or have treatments helped some?

My cough has worsened over the last 20 years. I have been tested for reflux disease, asthma, allergies, and have had many tests. I was on an inhaler for a short time, but that made the situation worse and it was stopped. I used Fluticasone on and off for a couple of years, but no help. Years ago, I read an article that Fluticasone could cause loss of smell, but I don't know if that is true. Nothing has really helped.

Thank you for your information. I am dealing with a cough of at least 10 yrs, probably more. I am interested in a trial of Lyrica (gabapentin at the present time, not helping much, especially at night; hoping Lyrica will be more effective).

I asked my dr about trying amitriptyline but he says it has a lot of side effects. I'm hoping he will give me a trial of Lyrica, as gabapentin doesn't seem to do much. I see Lyrica hasn't helped you. I guess everyone reacts differently to meds. Best of luck!

I see several comments from folks who, like myself, are self-diagnosed with LSN resulting in a chronic, intractible cough after years of 'treatment" with all manner of meds -- GI, ENT, Pulmonary, and my GP. Nothing has worked thus far, although I've persuaded my dr to try some treatments for LSN rather than all the previous types of meds. On gabapentin 300 mg, four a day. Results mixed -- seem to do better when I add a little THC for extra help, but would prefer not to do that. Cough med -- hydrocodone -- helps for a little while, but not something I want to be on forever.